RECRUITING

Natural History of Sickle Cell Disease

Description

This study is not a treatment protocol and no experimental treatments are involved. Study participants may be seen as needed for clinical, translational and basic research studies, or as medically indicated. Subjects will receive their general medical care outside the NIH and will be seen at our clinic or at CNHS with varying frequency. Subjects may be seen for multiple visits. Subjects may be asked to return for additional testing as needed. Clinical care for patients with sickle cell disease will be provided as appropriate through the Sickle Cell Clinic and the inpatient clinical center.

Conditions

Study Overview

Study Details

Study overview

This study is not a treatment protocol and no experimental treatments are involved. Study participants may be seen as needed for clinical, translational and basic research studies, or as medically indicated. Subjects will receive their general medical care outside the NIH and will be seen at our clinic or at CNHS with varying frequency. Subjects may be seen for multiple visits. Subjects may be asked to return for additional testing as needed. Clinical care for patients with sickle cell disease will be provided as appropriate through the Sickle Cell Clinic and the inpatient clinical center.

Studies of the Natural History of Sickle Cell Disease

Natural History of Sickle Cell Disease

Condition
Pain Crisis
Intervention / Treatment

-

Contacts and Locations

Washington

Childrens National Health Center, Washington, District of Columbia, United States, 20010

Bethesda

Suburban Hospital, Bethesda, Maryland, United States, 20814

Bethesda

National Institutes of Health Clinical Center, Bethesda, Maryland, United States, 20892

Participation Criteria

Researchers look for people who fit a certain description, called eligibility criteria. Some examples of these criteria are a person's general health condition or prior treatments.

For general information about clinical research, read Learn About Studies.

Eligibility Criteria

  • * Individuals with known or suspected sickle cell disease
  • * 2 years of age and older
  • * Willing to provide informed consent or appropriate informed consent from parent or legal guardian
  • * Patients seen at sickle outpatient clinics at any one of the participating centers (CNHS or NIH).
  • * Patient and/or guardian unable and unwilling to give informed consent or assent.
  • * Patients less than 2 years of age.

Ages Eligible for Study

2 Years to 90 Years

Sexes Eligible for Study

ALL

Accepts Healthy Volunteers

No

Collaborators and Investigators

National Heart, Lung, and Blood Institute (NHLBI),

Swee Lay Thein, M.D., PRINCIPAL_INVESTIGATOR, National Heart, Lung, and Blood Institute (NHLBI)

Study Record Dates

N/A