RECRUITING

Chromosome 18 Clinical Research Center

Study Overview

This clinical trial focuses on testing the efficacy of different digital interventions to promote re-engagement in cancer-related long-term follow-up care for adolescent and young adult (AYA) survivors of childhood cancer.

Description

Our vision, that of the researchers at the University of Texas Health Science Center at San Antonio, is that every person with a chromosome 18 abnormality will have an autonomous and healthy life. Our mission is to provide families affected by chromosome 18 abnormalities with comprehensive medical and educational information. Our goals are to provide definitive medical and education resources for the families of individuals with chromosome 18 abnormalities; perform and facilitate groundbreaking clinical and basic research relating to the syndromes of chromosome 18; and to provide treatments to help these individuals overcome the effects of their chromosome abnormality.

Official Title

The Chromosome 18 Clinical Research Center

Quick Facts

Study Start:1993-09
Study Completion:2040-12
Study Type:Not specified
Phase:Not Applicable
Enrollment:Not specified
Status:RECRUITING

Study ID

NCT00227253

Participation Criteria

Researchers look for people who fit a certain description, called eligibility criteria. Some examples of these criteria are a person's general health condition or prior treatments.

Ages Eligible for Study:Not specified
Sexes Eligible for Study:ALL
Accepts Healthy Volunteers:Yes
Standard Ages:CHILD, ADULT, OLDER_ADULT
Inclusion CriteriaExclusion Criteria
  1. * Must have a confirmed diagnosis of Chromosome 18 or be the parent/guardian of a child with Chromosome 18
  2. * Subject must be at least one year of age to participate in the clinical examination aspect of the study (due to issues of venous access and blood volume required to complete studies)
  3. * General health status: good
  1. * Pregnant women
  2. * Dead fetuses
  3. * Prisoners
  4. * Non-viable neonates or neonates of uncertain viability

Contacts and Locations

Study Contact

Jannine D. Cody, Ph.D.
CONTACT
210-567-9220
cody@uthscsa.edu
Jonathan Gelfond, M.D., Ph.D.
CONTACT
210-567-0851
gelfondjal@uthscsa.edu

Principal Investigator

Jannine D. Cody, Ph.D.
PRINCIPAL_INVESTIGATOR
The University of Texas Health Science Center at San Antonio
Jonathan Gelfond, M.D., Ph.D.
PRINCIPAL_INVESTIGATOR
The University of Texas Health Science Center at San Antonio

Study Locations (Sites)

University Health Systems Hospital
San Antonio, Texas, 78229
United States
University of Texas Health Science Center at San Antonio
San Antonio, Texas, 78229
United States

Collaborators and Investigators

Sponsor: The University of Texas Health Science Center at San Antonio

  • Jannine D. Cody, Ph.D., PRINCIPAL_INVESTIGATOR, The University of Texas Health Science Center at San Antonio
  • Jonathan Gelfond, M.D., Ph.D., PRINCIPAL_INVESTIGATOR, The University of Texas Health Science Center at San Antonio

Study Record Dates

These dates track the progress of study record and summary results submissions to ClinicalTrials.gov. Study records and reported results are reviewed by the National Library of Medicine (NLM) to make sure they meet specific quality control standards before being posted on the public website.

Study Registration Dates

Study Start Date1993-09
Study Completion Date2040-12

Study Record Updates

Study Start Date1993-09
Study Completion Date2040-12

Terms related to this study

Keywords Provided by Researchers

  • Phenotype
  • Growth
  • Genotype
  • Chromosome 18

Additional Relevant MeSH Terms

  • Chromosome Aberrations
  • Growth Hormone Deficiency
  • Hypomyelination