RECRUITING

International Lymphatic Disease and Lymphedema Registry

Study Overview

This clinical trial focuses on testing the efficacy of different digital interventions to promote re-engagement in cancer-related long-term follow-up care for adolescent and young adult (AYA) survivors of childhood cancer.

Description

The purpose of the International Lymphatic Disease and Lymphedema Patient Registry and Biorepository is to collect health information in order to study the disease classification, natural history, and impact of Lymphatic Disease, Lymphedema and Related Disorders and its treatments and medical outcomes.

Official Title

The International Lymphatic Disease and Lymphedema Patient Registry and Biorepository

Quick Facts

Study Start:2009-03
Study Completion:2025-12
Study Type:Not specified
Phase:Not Applicable
Enrollment:Not specified
Status:RECRUITING

Study ID

NCT01336790

Participation Criteria

Researchers look for people who fit a certain description, called eligibility criteria. Some examples of these criteria are a person's general health condition or prior treatments.

Ages Eligible for Study:Not specified
Sexes Eligible for Study:ALL
Accepts Healthy Volunteers:No
Standard Ages:CHILD, ADULT, OLDER_ADULT
Inclusion CriteriaExclusion Criteria
  1. * Presence of lymphatic disease
  1. * None

Contacts and Locations

Study Contact

Stanley Rockson, MD
CONTACT
(650) 7231396

Principal Investigator

Stanley G Rockson
PRINCIPAL_INVESTIGATOR
Stanford University

Study Locations (Sites)

Stanford University School of Medicine
Stanford, California, 94305
United States

Collaborators and Investigators

Sponsor: Stanford University

  • Stanley G Rockson, PRINCIPAL_INVESTIGATOR, Stanford University

Study Record Dates

These dates track the progress of study record and summary results submissions to ClinicalTrials.gov. Study records and reported results are reviewed by the National Library of Medicine (NLM) to make sure they meet specific quality control standards before being posted on the public website.

Study Registration Dates

Study Start Date2009-03
Study Completion Date2025-12

Study Record Updates

Study Start Date2009-03
Study Completion Date2025-12

Terms related to this study

Keywords Provided by Researchers

  • Lymphatic disease
  • Lymphedema
  • Lymphangiomatosis
  • Lymphangiectasia
  • Protein-losing enteropathy
  • Vascular Anomalies

Additional Relevant MeSH Terms

  • Lymphedema