RECRUITING

The National Amyotrophic Lateral Sclerosis Registry

Study Overview

This clinical trial focuses on testing the efficacy of different digital interventions to promote re-engagement in cancer-related long-term follow-up care for adolescent and young adult (AYA) survivors of childhood cancer.

Description

The purpose of this registry is to (A) better describe the incidence and prevalence of Amyotrophic Lateral Sclerosis (ALS) in the United States;(B) examine appropriate factors, such as environmental and occupational, that may be associated with the disease; (C) better outline key demographic factors (such as age, race or ethnicity, gender, and family history of individuals who are diagnosed with the disease) associated with the disease; and (D) better examine the connection between ALS and other motor neuron disorders that can be confused with ALS, misdiagnosed as ALS, and in some cases progress to ALS.

Official Title

The National Amyotrophic Lateral Sclerosis Registry

Quick Facts

Study Start:2010-10
Study Completion:2030-12
Study Type:Not specified
Phase:Not Applicable
Enrollment:Not specified
Status:RECRUITING

Study ID

NCT01772602

Participation Criteria

Researchers look for people who fit a certain description, called eligibility criteria. Some examples of these criteria are a person's general health condition or prior treatments.

Ages Eligible for Study:18 Years
Sexes Eligible for Study:ALL
Accepts Healthy Volunteers:No
Standard Ages:ADULT, OLDER_ADULT
Inclusion CriteriaExclusion Criteria
  1. Age 18 years or older
  2. Willing and able to provide informed consent
  3. Able to understand and follow study procedures
  4. Stable medical condition
  1. Pregnancy or breastfeeding
  2. Severe psychiatric disorders
  3. Active substance abuse
  4. Unstable medical conditions
  5. Inability to comply with study requirements

Contacts and Locations

Study Contact

Paul Mehta, MD
CONTACT
770-488-0556
PMehta1@cdc.gov
Kevin Horton, DrPH, MSPH
CONTACT
770-488-1555
dhorton@cdc.gov

Principal Investigator

Paul Mehta, MD
PRINCIPAL_INVESTIGATOR
Centers for Disease Control and Prevention

Study Locations (Sites)

CDC
Atlanta, Georgia, 30333
United States

Collaborators and Investigators

Sponsor: Centers for Disease Control and Prevention

  • Paul Mehta, MD, PRINCIPAL_INVESTIGATOR, Centers for Disease Control and Prevention

Study Record Dates

These dates track the progress of study record and summary results submissions to ClinicalTrials.gov. Study records and reported results are reviewed by the National Library of Medicine (NLM) to make sure they meet specific quality control standards before being posted on the public website.

Study Registration Dates

Study Start Date2010-10
Study Completion Date2030-12

Study Record Updates

Study Start Date2010-10
Study Completion Date2030-12

Terms related to this study

Keywords Provided by Researchers

  • Amyotrophic Lateral Sclerosis
  • Lou Gehrig's Disease
  • Motor Neuron Disease

Additional Relevant MeSH Terms

  • Amyotrophic Lateral Sclerosis