RECRUITING

The 3q29 Deletion and 3q29 Duplication: Architecture of Behavioral Phenotypes

Study Overview

This clinical trial focuses on testing the efficacy of different digital interventions to promote re-engagement in cancer-related long-term follow-up care for adolescent and young adult (AYA) survivors of childhood cancer.

Description

The 3q29 deletion syndrome is caused by a deletion of a small part of human chromosome 3, and the duplication syndrome is caused by a duplication of this same small region. The purpose of this study is to understand the medical and behavioral consequences of these syndromes.

Official Title

The 3q29 Deletion and 3q29 Duplication: Architecture of Behavioral Phenotypes

Quick Facts

Study Start:2013-07
Study Completion:2028-01
Study Type:Not specified
Phase:Not Applicable
Enrollment:Not specified
Status:RECRUITING

Study ID

NCT02447861

Participation Criteria

Researchers look for people who fit a certain description, called eligibility criteria. Some examples of these criteria are a person's general health condition or prior treatments.

Ages Eligible for Study:Not specified
Sexes Eligible for Study:ALL
Accepts Healthy Volunteers:Yes
Standard Ages:CHILD, ADULT, OLDER_ADULT
Inclusion CriteriaExclusion Criteria
  1. * Diagnosis of 3q29 deletion or 3q29 duplication
  2. * Consent from parents or guardians or an adult with 3q29 deletion or 3q29 duplication that does not require a legal guardian or an adult who is the healthy sibling of an individual with 3q29 deletion or 3q29 duplication or a healthy age-matched control
  1. * Clinically significant medical disease that would prohibit participation in the study procedures

Contacts and Locations

Study Contact

Jennifer G Mulle, MHS, PhD
CONTACT
(848) 445-9866
jennifer.mulle@rutgers.edu
Teresa Irving
CONTACT
tmi21@cabm.rutgers.edu

Principal Investigator

Jennifer Mulle, MHS, PhD
PRINCIPAL_INVESTIGATOR
Rutgers University

Study Locations (Sites)

Internet-Based
Piscataway, New Jersey, 08854
United States

Collaborators and Investigators

Sponsor: Rutgers, The State University of New Jersey

  • Jennifer Mulle, MHS, PhD, PRINCIPAL_INVESTIGATOR, Rutgers University

Study Record Dates

These dates track the progress of study record and summary results submissions to ClinicalTrials.gov. Study records and reported results are reviewed by the National Library of Medicine (NLM) to make sure they meet specific quality control standards before being posted on the public website.

Study Registration Dates

Study Start Date2013-07
Study Completion Date2028-01

Study Record Updates

Study Start Date2013-07
Study Completion Date2028-01

Terms related to this study

Additional Relevant MeSH Terms

  • Microdeletion 3q29 Syndrome
  • Microduplication 3q29 Syndrome