The Myelin Disorders Biorepository Project (MDBP) seeks to collect and analyze clinical data and biological samples from leukodystrophy patients worldwide to support ongoing and future research projects. The MDBP is one of the world's largest leukodystrophy biorepositories, having enrolled nearly 2,000 affected individuals since it was launched over a decade ago. Researchers working in the biorepository hope to use these materials to uncover new genetic etiologies for various leukodystrophies, develop biomarkers for use in future clinical trials, and better understand the natural history of these disorders. The knowledge gained from these efforts may help improve the diagnostic tools and treatment options available to patients in the future.
The Myelin Disorders Biorepository Project (MDBP) seeks to collect and analyze clinical data and biological samples from leukodystrophy patients worldwide to support ongoing and future research projects. The MDBP is one of the world's largest leukodystrophy biorepositories, having enrolled nearly 2,000 affected individuals since it was launched over a decade ago. Researchers working in the biorepository hope to use these materials to uncover new genetic etiologies for various leukodystrophies, develop biomarkers for use in future clinical trials, and better understand the natural history of these disorders. The knowledge gained from these efforts may help improve the diagnostic tools and treatment options available to patients in the future.
The Myelin Disorders Biorepository Project
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Children's Hospital of Los Angeles, Los Angeles, California, United States, 90027
Children's Hospital of Orange County, Orange, California, United States, 92868
Stanford University (Lucile Packard Children's Hospital), Palo Alto, California, United States, 94304
University of California, Davis (UC Davis Health), Sacramento, California, United States, 95817
University of California, San Diego (Rady Children's Hospital), San Diego, California, United States, 92123
UCSF Benioff Children's Hospital, San Francisco, California, United States, 94158
Children's National Medical Center, Washington, District of Columbia, United States, 20010
Emory University (Children's Healthcare of Atlanta), Atlanta, Georgia, United States, 30342
Ann & Robert H. Lurie Children's Hospital of Chicago, Chicago, Illinois, United States, 60611
Kennedy Krieger Institute, Baltimore, Maryland, United States, 21205
Researchers look for people who fit a certain description, called eligibility criteria. Some examples of these criteria are a person's general health condition or prior treatments.
For general information about clinical research, read Learn About Studies.
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Children's Hospital of Philadelphia,
Adeline Vanderver, MD, PRINCIPAL_INVESTIGATOR, Children's Hospital of Philadelphia
2030-12-08