RECRUITING

UTHealth Turner Syndrome Research Registry

Conditions

Study Overview

This clinical trial focuses on testing the efficacy of different digital interventions to promote re-engagement in cancer-related long-term follow-up care for adolescent and young adult (AYA) survivors of childhood cancer.

Description

The investigators will conduct genetic comparisons between Turner Syndrome (TS) patients with and without Bicuspid Aortic Valve (BAV) to identify causative agents of BAV in people with TS. The investigators will correlate the patterns and prevalence of structural heart defects in TS women with emerging molecular data to identify patients who are at high risk for cardiovascular complications

Official Title

UTHealth Turner Syndrome Research Registry

Quick Facts

Study Start:2015-08-28
Study Completion:2035-01-01
Study Type:Not specified
Phase:Not Applicable
Enrollment:Not specified
Status:RECRUITING

Study ID

NCT03185702

Participation Criteria

Researchers look for people who fit a certain description, called eligibility criteria. Some examples of these criteria are a person's general health condition or prior treatments.

Ages Eligible for Study:Not specified
Sexes Eligible for Study:FEMALE
Accepts Healthy Volunteers:Not specified
Standard Ages:CHILD, ADULT, OLDER_ADULT
Inclusion CriteriaExclusion Criteria
  1. * Diagnosis of Turner Syndrome
  1. * Diagnosis excluding Turner Syndrome

Contacts and Locations

Study Contact

Siddharth Prakash, MD, PhD
CONTACT
7135007003
Siddharth.K.Prakash@uth.tmc.edu

Study Locations (Sites)

University of Texas Health Science Center Houston
Houston, Texas, 77030
United States

Collaborators and Investigators

Sponsor: The University of Texas Health Science Center, Houston

Study Record Dates

These dates track the progress of study record and summary results submissions to ClinicalTrials.gov. Study records and reported results are reviewed by the National Library of Medicine (NLM) to make sure they meet specific quality control standards before being posted on the public website.

Study Registration Dates

Study Start Date2015-08-28
Study Completion Date2035-01-01

Study Record Updates

Study Start Date2015-08-28
Study Completion Date2035-01-01

Terms related to this study

Additional Relevant MeSH Terms

  • Turner Syndrome