RECRUITING

PatientSpot Formerly Known as ArthritisPower

Study Overview

This clinical trial focuses on testing the efficacy of different digital interventions to promote re-engagement in cancer-related long-term follow-up care for adolescent and young adult (AYA) survivors of childhood cancer.

Description

Patient Power is a patient research network and database (registry) to collect prospective information about demographics, self-reported diagnoses and medications, and willingness to participate in research from participants with rheumatoid arthritis (RA), spondyloarthritis (SpA), other musculoskeletal conditions, chronic neurological conditions like migraine, chronic pulmonary conditions like Chronic Obstructive Pulmonary Disease (COPD), asthma, autoimmune dermatological conditions such as psoriasis, and other chronic inflammatory or immune-mediated conditions. In addition, since patients with chronic conditions often have other co-morbidities like cardiovascular health and obesity-related metabolic disorders, these conditions will also be included. Participants will provide information from their smartphones or personal computers. The information will be used by researchers and clinicians to help patients and their providers make better, more informed decisions about treatment of chronic conditions.

Quick Facts

Study Start:2015-04-01
Study Completion:2025-03-01
Study Type:Not specified
Phase:Not Applicable
Enrollment:Not specified
Status:RECRUITING

Study ID

NCT03840928

Participation Criteria

Researchers look for people who fit a certain description, called eligibility criteria. Some examples of these criteria are a person's general health condition or prior treatments.

Ages Eligible for Study:19 Years
Sexes Eligible for Study:ALL
Accepts Healthy Volunteers:Yes
Standard Ages:ADULT, OLDER_ADULT
Inclusion CriteriaExclusion Criteria
  1. * Self-report that a physician has given a diagnosis of a chronic condition listed in the registry.
  2. * The Registry is only intended at this time for residents of the United States and United States territories and Canada who are nineteen (19) years or older (for Puerto Rico residents, you must be 21 years or older to participate).
  1. Pregnancy or breastfeeding
  2. Severe psychiatric disorders
  3. Active substance abuse
  4. Unstable medical conditions
  5. Inability to comply with study requirements

Contacts and Locations

Study Contact

Shilpa Venkatachalam, PhD
CONTACT
(845) 348 0400
bnowell@ghlf.org
Laura Stradford, MPH
CONTACT
(845) 348 0400
lstradford@ghlf.org

Study Locations (Sites)

Global Healthy Living Foundation
Upper Nyack, New York, 10960
United States

Collaborators and Investigators

Sponsor: Global Healthy Living Foundation

Study Record Dates

These dates track the progress of study record and summary results submissions to ClinicalTrials.gov. Study records and reported results are reviewed by the National Library of Medicine (NLM) to make sure they meet specific quality control standards before being posted on the public website.

Study Registration Dates

Study Start Date2015-04-01
Study Completion Date2025-03-01

Study Record Updates

Study Start Date2015-04-01
Study Completion Date2025-03-01

Terms related to this study

Additional Relevant MeSH Terms

  • Rheumatoid Arthritis
  • Ankylosing Spondylitis
  • Fibromyalgia
  • Gout
  • Crohn Disease
  • Juvenile Idiopathic Arthritis
  • Lupus Erythematosus
  • Myositis
  • Osteoarthritis
  • Osteoporosis
  • Psoriasis
  • Psoriatic Arthritis
  • Scleroderma
  • Dermatomyositis
  • Inflammatory Bowel Diseases
  • Polymyositis
  • Axial Spondyloarthritis
  • Diffuse Idiopathic Skeletal Hyperostosis
  • Polymyalgia Rheumatica
  • Giant Cell Arteritis
  • Temporal Arteritis
  • Wegener
  • Relapsing Polychondritis
  • Undifferentiated Connective Tissue Disease
  • Spinal Cord Injuries
  • Alzheimer Disease
  • Amyotrophic Lateral Sclerosis
  • Ataxia
  • Bell Palsy
  • Brain Tumor
  • Cerebral Aneurysm
  • Epilepsy
  • Guillain-Barre Syndrome
  • Headache
  • Head Injury
  • Hydrocephalus
  • Lumbar Disc Disease
  • Meningitis
  • Multiple Sclerosis
  • Muscular Dystrophy
  • Neurocutaneous Syndromes
  • Parkinson Disease
  • Stroke
  • Cluster Headache
  • Tension-Type Headache
  • Chronic Obstructive Pulmonary Disease
  • Asthma
  • Lung Cancer
  • Cystic Fibrosis
  • Sleep Apnea
  • Eczema
  • Alopecia
  • Chronic Inflammation
  • Unstable Angina
  • Heart Attack
  • Heart Failure
  • Arrythmia
  • Valve Heart Disease
  • High Blood Pressure
  • Congenital Heart Disease
  • Peripheral Arterial Disease
  • Diabetes
  • Chronic Liver Disease
  • Obesity