RECRUITING

Analysis of Human ALS Tissues and Registry of ALS Patients

Study Overview

This clinical trial focuses on testing the efficacy of different digital interventions to promote re-engagement in cancer-related long-term follow-up care for adolescent and young adult (AYA) survivors of childhood cancer.

Description

Amyotrophic Lateral Sclerosis (ALS), often referred to as Lou Gehrig's Disease, is a progressive, terminal condition of muscle weakness that is associated with degeneration of neurons in the spinal cord and brain. This devastating disorder afflicts people in the prime of their lives. At the present time, there are no cures for this disorder, and current treatments are marginal at best. Despite years of intensive research, a fundamental understanding of this disease is still lacking. There is a need to identify both reliable markers of disease progression and effective treatments. The goal of this research is to bring a greater understanding of ALS patients closer to the research studies that can lead to new hypotheses and approaches.

Official Title

Analysis of Human ALS Tissues and Registry of ALS Patients

Quick Facts

Study Start:2020-09-01
Study Completion:2025-08-30
Study Type:Not specified
Phase:Not Applicable
Enrollment:Not specified
Status:RECRUITING

Study ID

NCT05067179

Participation Criteria

Researchers look for people who fit a certain description, called eligibility criteria. Some examples of these criteria are a person's general health condition or prior treatments.

Ages Eligible for Study:18 Years to 90 Years
Sexes Eligible for Study:ALL
Accepts Healthy Volunteers:No
Standard Ages:ADULT, OLDER_ADULT
Inclusion CriteriaExclusion Criteria
  1. * Patients over the age of 18
  2. * Established diagnosis of ALS
  3. * Able and willing to give written informed consent and must authorize release and use of protected health information
  1. * Patients below the age of 18
  2. * No diagnosis of ALS

Contacts and Locations

Study Contact

Samreen Ahmed
CONTACT
312-413-1882
sa50@uic.edu

Principal Investigator

Jeffrey Loeb, MD
PRINCIPAL_INVESTIGATOR
University of Illinois at Chicago

Study Locations (Sites)

University of Illinois at Chicago
Chicago, Illinois, 60612
United States

Collaborators and Investigators

Sponsor: University of Illinois at Chicago

  • Jeffrey Loeb, MD, PRINCIPAL_INVESTIGATOR, University of Illinois at Chicago

Study Record Dates

These dates track the progress of study record and summary results submissions to ClinicalTrials.gov. Study records and reported results are reviewed by the National Library of Medicine (NLM) to make sure they meet specific quality control standards before being posted on the public website.

Study Registration Dates

Study Start Date2020-09-01
Study Completion Date2025-08-30

Study Record Updates

Study Start Date2020-09-01
Study Completion Date2025-08-30

Terms related to this study

Keywords Provided by Researchers

  • Amyotrophic Lateral Sclerosis (ALS)
  • Lou Gehrig's Disease
  • Neurodegenerative Diseases
  • Neuromuscular Diseases
  • Nervous System Diseases

Additional Relevant MeSH Terms

  • Amyotrophic Lateral Sclerosis