RECRUITING

Community Outreach for Palliative Engagement -- Parkinson Disease

Study Overview

This clinical trial focuses on testing the efficacy of different digital interventions to promote re-engagement in cancer-related long-term follow-up care for adolescent and young adult (AYA) survivors of childhood cancer.

Description

The purpose of this study is to learn more about the effectiveness of palliative care training for community physicians and telemedicine support services for patients and carepartners with Parkinson's disease and Lewy Body Dementia (LBD) or related conditions and their care partners. Palliative care is a treatment approach focused on improving quality of life by relieving suffering in the areas of physical symptoms such as pain, psychiatric symptoms such as depression, psychosocial issues and spiritual needs. Telemedicine is the use of technology that allows participants to interact with a health care provider without being physically near the provider.

Official Title

Building Online Community to Improve Patient and Caregiver Outcomes in Parkinson Disease, Lewy Body Dementia and Related Disorders

Quick Facts

Study Start:2022-04-26
Study Completion:2026-08-31
Study Type:Not specified
Phase:Not Applicable
Enrollment:Not specified
Status:RECRUITING

Study ID

NCT05222386

Participation Criteria

Researchers look for people who fit a certain description, called eligibility criteria. Some examples of these criteria are a person's general health condition or prior treatments.

Ages Eligible for Study:40 Years
Sexes Eligible for Study:ALL
Accepts Healthy Volunteers:Yes
Standard Ages:ADULT, OLDER_ADULT
Inclusion CriteriaExclusion Criteria
  1. Age 18 years or older
  2. Willing and able to provide informed consent
  3. Able to understand and follow study procedures
  4. Stable medical condition
  1. Pregnancy or breastfeeding
  2. Severe psychiatric disorders
  3. Active substance abuse
  4. Unstable medical conditions
  5. Inability to comply with study requirements

Contacts and Locations

Study Contact

Benzi Kluger, MD
CONTACT
585-275-2529
Benzi_Kluger@URMC.Rochester.edu
Christina Seger
CONTACT
877-626-7373
COPE-PD_Help@chet.rochester.edu

Principal Investigator

Benzi Kluger, MD
PRINCIPAL_INVESTIGATOR
University of Rochester

Study Locations (Sites)

University of Rochester Medical Center for Health + Technology
Rochester, New York, 14642
United States

Collaborators and Investigators

Sponsor: University of Rochester

  • Benzi Kluger, MD, PRINCIPAL_INVESTIGATOR, University of Rochester

Study Record Dates

These dates track the progress of study record and summary results submissions to ClinicalTrials.gov. Study records and reported results are reviewed by the National Library of Medicine (NLM) to make sure they meet specific quality control standards before being posted on the public website.

Study Registration Dates

Study Start Date2022-04-26
Study Completion Date2026-08-31

Study Record Updates

Study Start Date2022-04-26
Study Completion Date2026-08-31

Terms related to this study

Additional Relevant MeSH Terms

  • Parkinson Disease Dementia
  • Parkinson Disease
  • Parkinson's Disease and Parkinsonism
  • Lewy Body Parkinsonism
  • Dementia With Lewy Bodies
  • Progressive Supranuclear Palsy
  • Corticobasal Degeneration
  • Multiple System Atrophy
  • Vascular Parkinsonism