RECRUITING

Mental Health Crises in Youth With IDDs

Description

This study is an unmatched, case-control study of 150 youth (Ages 7-17) with a parent reported Intellectual Developmental Disability (IDD) who present to Rady Children's Hospital Emergency Department with a Mental Health Crisis (MHC). Rady Children's Institute for Genomic Medicine (RCIGM) will collect biological samples (such as blood) of these participants to study their genomes, medical and psychiatric profiles to better understand specific characteristics that may predispose them to MHC's. The 150 youth will be compared to historical, publicly available cohorts of youth with IDD's

Study Overview

Study Details

Study overview

This study is an unmatched, case-control study of 150 youth (Ages 7-17) with a parent reported Intellectual Developmental Disability (IDD) who present to Rady Children's Hospital Emergency Department with a Mental Health Crisis (MHC). Rady Children's Institute for Genomic Medicine (RCIGM) will collect biological samples (such as blood) of these participants to study their genomes, medical and psychiatric profiles to better understand specific characteristics that may predispose them to MHC's. The 150 youth will be compared to historical, publicly available cohorts of youth with IDD's

Understanding Mental Health Crises in Youth With Intellectual and Developmental Disabilities

Mental Health Crises in Youth With IDDs

Condition
Intellectual Disability
Intervention / Treatment

-

Contacts and Locations

San Diego

Rady Children's Hospital San Diego, San Diego, California, United States, 92123

Participation Criteria

Researchers look for people who fit a certain description, called eligibility criteria. Some examples of these criteria are a person's general health condition or prior treatments.

For general information about clinical research, read Learn About Studies.

Eligibility Criteria

  • * Aggression towards others
  • * Severe agitation
  • * Self-injury
  • * Elopement
  • * Already received any prior whole genome sequencing or exome sequencing
  • * Unable to approach the family or patient for enrollment
  • * Unable to obtain informed consent
  • * family members are ineligible for participation in this study if they are known to not be genetically related to the child/adolescent participant and/or if they are a member of a protected research population.

Ages Eligible for Study

7 Years to 17 Years

Sexes Eligible for Study

ALL

Accepts Healthy Volunteers

No

Collaborators and Investigators

Rady Pediatric Genomics & Systems Medicine Institute,

Aaron Besterman, MD, MD, PRINCIPAL_INVESTIGATOR, Rady Children's Institute for Genomic Medicine

Study Record Dates

2027-07-01