RECRUITING

Caregiving While Black

Study Overview

This clinical trial focuses on testing the efficacy of different digital interventions to promote re-engagement in cancer-related long-term follow-up care for adolescent and young adult (AYA) survivors of childhood cancer.

Description

The goal of this project is to revise and test an online education program designed to enhance the mastery of Black American caregivers to provide care to family members or friends living with a dementia illness. This study has two phases, and participants will take part in Phase 1 and/or Phase 2 of this study. Participants will take part in one and/or both phases in this study if they are a caregiver to a person living with dementia. Caregivers must self-identify as Black American and as the unpaid principal caregiver of a community-dwelling person living with a dementia illness and who is the principal companion of that person during healthcare encounters. Caregivers must also be 18 years of age or older and will be providing at least some hands-on care multiple times a week, if not daily. It is preferred that participants have access to and the ability to use broadband internet services to engage with the Caregiving While Black course. Participants should not have a plan in place to move the person living with a dementia illness to an institutional setting within the next six months.

Official Title

Caregiving While Black: Optimizing Outcomes for Black Dementia Caregivers

Quick Facts

Study Start:2023-05-06
Study Completion:2026-10
Study Type:Not specified
Phase:Not Applicable
Enrollment:Not specified
Status:RECRUITING

Study ID

NCT05772689

Participation Criteria

Researchers look for people who fit a certain description, called eligibility criteria. Some examples of these criteria are a person's general health condition or prior treatments.

Ages Eligible for Study:18 Years
Sexes Eligible for Study:ALL
Accepts Healthy Volunteers:Yes
Standard Ages:ADULT, OLDER_ADULT
Inclusion CriteriaExclusion Criteria
  1. * 18 years or older
  2. * family member (or friend) who self-identifies as Black American and as the principal caregiver of a community-dwelling person living with dementia (PLWD), (not in hospice care) and who is the principal companion of that person during healthcare encounters;
  3. * provides some hands-on care multiple times a week;
  4. * has access to an electronic device and/or access to broadband internet; and
  5. * able to speak and understand English.
  6. * Caregivers are not required to be co-located with the care recipient.
  1. * Those who cannot provide consent,
  2. * are not yet adults (\<18 years of age),
  3. * prisoners, cognitively impaired adults,
  4. * has plans to relinquish caring responsibilities for PLWD or considering moving the PLWD to an institutional setting within the next 6 months, and
  5. * who are not able to clearly understand English.

Contacts and Locations

Study Contact

Fayron Epps, PhD, RN
CONTACT
404-727-6936
fepps@emory.edu

Principal Investigator

Fayron Epps, PhD, RN
PRINCIPAL_INVESTIGATOR
Emory University

Study Locations (Sites)

Emory University
Atlanta, Georgia, 30322
United States

Collaborators and Investigators

Sponsor: Emory University

  • Fayron Epps, PhD, RN, PRINCIPAL_INVESTIGATOR, Emory University

Study Record Dates

These dates track the progress of study record and summary results submissions to ClinicalTrials.gov. Study records and reported results are reviewed by the National Library of Medicine (NLM) to make sure they meet specific quality control standards before being posted on the public website.

Study Registration Dates

Study Start Date2023-05-06
Study Completion Date2026-10

Study Record Updates

Study Start Date2023-05-06
Study Completion Date2026-10

Terms related to this study

Keywords Provided by Researchers

  • Caregiver of patients living with dementia
  • African-American caregivers
  • Black caregivers

Additional Relevant MeSH Terms

  • Caregiver Burden