RECRUITING

Improving the Health of Parents and Their Adolescent and Transition-age Youth With Intellectual and Developmental Disabilities

Description

This study will determine the comparative effectiveness of Go Act, a tailored advocacy curriculum versus Peer parent-directed peer learning for increasing parent activation for parents of youth with intellectual and developmental disabilities. Second, it will determine the comparative effectiveness of the two study arms for improving parent and youth health outcomes while assessing whether parent activation serves as a mechanism that mediates their effects on health outcomes.

Study Overview

Study Details

Study overview

This study will determine the comparative effectiveness of Go Act, a tailored advocacy curriculum versus Peer parent-directed peer learning for increasing parent activation for parents of youth with intellectual and developmental disabilities. Second, it will determine the comparative effectiveness of the two study arms for improving parent and youth health outcomes while assessing whether parent activation serves as a mechanism that mediates their effects on health outcomes.

Improving the Health of Parents and Their Adolescent and Transition-age Youth With Intellectual and Developmental Disabilities

Improving the Health of Parents and Their Adolescent and Transition-age Youth With Intellectual and Developmental Disabilities

Condition
Intellectual Disability
Intervention / Treatment

-

Contacts and Locations

Asheville

Family Medicine at the Mountain Area Health Education Center, Asheville, North Carolina, United States, 28803

Carrboro

The Carolina Institute for Developmental Disabilities, Carrboro, North Carolina, United States, 27510

Chapel Hill

UNC Adult Psychiatry Clinic, Chapel Hill, North Carolina, United States, 27514

Participation Criteria

Researchers look for people who fit a certain description, called eligibility criteria. Some examples of these criteria are a person's general health condition or prior treatments.

For general information about clinical research, read Learn About Studies.

Eligibility Criteria

  • * Bringing their adolescent or young adult child (age 11-27), with diagnosed or suspected intellectual or developmental disability, to one of the participating clinics
  • * Able to attend group sessions
  • * Able to give informed consent
  • * Resident of North Carolina Youth
  • * Being between the ages of 11 and 27
  • * Having diagnosed or suspected intellectual or developmental disability
  • * Being present for a visit at one of the study clinics
  • * Having evidence of emergency mental health needs
  • * Not willing to be recorded

Ages Eligible for Study

11 Years to 27 Years

Sexes Eligible for Study

ALL

Accepts Healthy Volunteers

Yes

Collaborators and Investigators

University of North Carolina, Chapel Hill,

Kathleen C Thomas, PhD, PRINCIPAL_INVESTIGATOR, University of North Carolina, Chapel Hill

Study Record Dates

2026-03