RECRUITING

MyChart Proxy Outreach to Parents (MyPOP)

Study Overview

This clinical trial focuses on testing the efficacy of different digital interventions to promote re-engagement in cancer-related long-term follow-up care for adolescent and young adult (AYA) survivors of childhood cancer.

Description

The goal of this randomized controlled trial is to assess the extent to which different modes of contacting parents who have not yet enabled to access to their children's medical records will result in greater proxy access. The main questions the study aims to answer are: * will outreach via text or patient portal message result in more parents having access than usual care (which is in-office suggestions to get access). * which mode - text or portal - will get more parents access. Participants will get a text message, or a portal message through their own patient portal, or no message. The investigators will check access to see which group has increased more during the study period.

Official Title

MyChart Proxy Outreach to Parents (MyPOP): Mode of Outreach to Parents for Proxy Patient Portal Enrollment

Quick Facts

Study Start:2024-10-15
Study Completion:2025-01
Study Type:Not specified
Phase:Not Applicable
Enrollment:Not specified
Status:RECRUITING

Study ID

NCT05989308

Participation Criteria

Researchers look for people who fit a certain description, called eligibility criteria. Some examples of these criteria are a person's general health condition or prior treatments.

Ages Eligible for Study:18 Years
Sexes Eligible for Study:ALL
Accepts Healthy Volunteers:Yes
Standard Ages:ADULT, OLDER_ADULT
Inclusion CriteriaExclusion Criteria
  1. * Guardian of a child aged ≤12 years seen in one of the two identified health centers within the last 3 years with guardian status and contact information documented in the child's EHR
  1. * Preferred method of contact for guardians with no MyChart is telephone or physical letter to home
  2. * Guardians with EHR proxy access already activated for all children in their care.

Contacts and Locations

Study Contact

Ada Fenick, MD
CONTACT
203-688-2475
Ada.fenick@yale.edu

Principal Investigator

Ada Fenick, MD
PRINCIPAL_INVESTIGATOR
Yale University

Study Locations (Sites)

Cornell Scott Hill Health Center
New Haven, Connecticut, 06511
United States
Fair Haven Community Health Center
New Haven, Connecticut, 06513
United States
Yale New Haven Health
New Haven, Connecticut, 06520
United States
Yale School of Medicine
New Haven, Connecticut, 06520
United States

Collaborators and Investigators

Sponsor: Yale University

  • Ada Fenick, MD, PRINCIPAL_INVESTIGATOR, Yale University

Study Record Dates

These dates track the progress of study record and summary results submissions to ClinicalTrials.gov. Study records and reported results are reviewed by the National Library of Medicine (NLM) to make sure they meet specific quality control standards before being posted on the public website.

Study Registration Dates

Study Start Date2024-10-15
Study Completion Date2025-01

Study Record Updates

Study Start Date2024-10-15
Study Completion Date2025-01

Terms related to this study

Additional Relevant MeSH Terms

  • Health Technology