RECRUITING

Future Planning and Well-Being for Individuals With Intellectual Disabilities and Family Caregivers

Description

This study will compare the effectiveness of a web-based long-term care planning tool (Map Our Life) partnered with traditional case management services to traditional case management services partnered with an attention-control Centers for Disease Control and Prevention (CDC) sponsored website on health promotion for people with disabilities. The goal of this clinical trial is to promote long-term care (LTC) knowledge and planning among individuals with intellectual/developmental disabilities (IDD) and their family caregivers to improve social supports, health, and quality of life outcomes.

Study Overview

Study Details

Study overview

This study will compare the effectiveness of a web-based long-term care planning tool (Map Our Life) partnered with traditional case management services to traditional case management services partnered with an attention-control Centers for Disease Control and Prevention (CDC) sponsored website on health promotion for people with disabilities. The goal of this clinical trial is to promote long-term care (LTC) knowledge and planning among individuals with intellectual/developmental disabilities (IDD) and their family caregivers to improve social supports, health, and quality of life outcomes.

Future Planning and Well-Being for Individuals With Intellectual Disabilities and Family Caregivers

Future Planning and Well-Being for Individuals With Intellectual Disabilities and Family Caregivers

Condition
Intellectual Disability
Intervention / Treatment

-

Contacts and Locations

New Hyde Park

Cohen Children's Medical Center, New Hyde Park, New York, United States, 11040

Participation Criteria

Researchers look for people who fit a certain description, called eligibility criteria. Some examples of these criteria are a person's general health condition or prior treatments.

For general information about clinical research, read Learn About Studies.

Eligibility Criteria

  • * Family caregivers of individuals with intellectual and/or developmental disabilities living in a community setting
  • * Ability to speak English or Spanish
  • * Access to a tablet, computer, or smartphone
  • * Speaks a language other than English or Spanish
  • * Does not have access to a tablet, computer, or smartphone
  • * Caregivers who care for individuals with intellectual and developmental disabilities who are less than 10 years of age.
  • * Special populations such as: fetuses, prisoners, or other institutionalized individuals

Ages Eligible for Study

18 Years to

Sexes Eligible for Study

ALL

Accepts Healthy Volunteers

No

Collaborators and Investigators

Northwell Health,

Study Record Dates

2029-04-30