RECRUITING

International CRDS Registry

Study Overview

This clinical trial focuses on testing the efficacy of different digital interventions to promote re-engagement in cancer-related long-term follow-up care for adolescent and young adult (AYA) survivors of childhood cancer.

Description

Calcium Release Deficiency Syndrome (CRDS) is a newly discovered genetic arrhythmia syndrome that confers a risk of life-threatening arrhythmias secondary to RYR2 loss-of-function. The International CRDS registry has been designed to facilitate large-scale evaluation of CRDS, including its phenotypic spectrum, approaches to risk stratification, and optimal treatment strategies.

Official Title

International Calcium Release Deficiency Syndrome Registry

Quick Facts

Study Start:2024-11-21
Study Completion:2050-12-31
Study Type:Not specified
Phase:Not Applicable
Enrollment:Not specified
Status:RECRUITING

Study ID

NCT06508164

Participation Criteria

Researchers look for people who fit a certain description, called eligibility criteria. Some examples of these criteria are a person's general health condition or prior treatments.

Ages Eligible for Study:Not specified
Sexes Eligible for Study:ALL
Accepts Healthy Volunteers:No
Standard Ages:CHILD, ADULT, OLDER_ADULT
Inclusion CriteriaExclusion Criteria
  1. Age 18 years or older
  2. Willing and able to provide informed consent
  3. Able to understand and follow study procedures
  4. Stable medical condition
  1. Pregnancy or breastfeeding
  2. Severe psychiatric disorders
  3. Active substance abuse
  4. Unstable medical conditions
  5. Inability to comply with study requirements

Contacts and Locations

Study Contact

Jason D Roberts, MD MAS
CONTACT
905-297-3479
crds@phri.ca

Principal Investigator

Thomas M Roston, MD, PhD
STUDY_CHAIR
University of British Columbia
Jason D Roberts, MD MAS
PRINCIPAL_INVESTIGATOR
McMaster University
SR Wayne Chen, PhD
PRINCIPAL_INVESTIGATOR
University of Calgary

Study Locations (Sites)

University of California
San Francisco, California, 94143
United States

Collaborators and Investigators

Sponsor: Population Health Research Institute

  • Thomas M Roston, MD, PhD, STUDY_CHAIR, University of British Columbia
  • Jason D Roberts, MD MAS, PRINCIPAL_INVESTIGATOR, McMaster University
  • SR Wayne Chen, PhD, PRINCIPAL_INVESTIGATOR, University of Calgary

Study Record Dates

These dates track the progress of study record and summary results submissions to ClinicalTrials.gov. Study records and reported results are reviewed by the National Library of Medicine (NLM) to make sure they meet specific quality control standards before being posted on the public website.

Study Registration Dates

Study Start Date2024-11-21
Study Completion Date2050-12-31

Study Record Updates

Study Start Date2024-11-21
Study Completion Date2050-12-31

Terms related to this study

Additional Relevant MeSH Terms

  • Calcium Release Deficiency Syndrome