RECRUITING

Jumpstarting Advance Care Planning With ANAI People

Description

The older Alaska Native/American Indian (ANAI) population is increasing at twice the rate of the general population with a higher burden of serious illness. Older ANAI adults with serious illness are half as likely to have advance directives (AD), indicating a need for improved access to and utilization of advance care planning (ACP) to ensure that medical care aligns with the values, goals, and preferences of ANAI patients and their families throughout the illness trajectory. The major goals of this cluster randomized trial (CRT) are to (1) evaluate the comparative effectiveness of usual care and JUMPSTART- ANAI, a culturally tailored ACP communication intervention, for prompting patient-driven ACP conversations between ANAI adults and primary care providers and to (1) identify key factors to successfully implement the intervention in health systems serving ANAI adults with serious illness.

Study Overview

Study Details

Study overview

The older Alaska Native/American Indian (ANAI) population is increasing at twice the rate of the general population with a higher burden of serious illness. Older ANAI adults with serious illness are half as likely to have advance directives (AD), indicating a need for improved access to and utilization of advance care planning (ACP) to ensure that medical care aligns with the values, goals, and preferences of ANAI patients and their families throughout the illness trajectory. The major goals of this cluster randomized trial (CRT) are to (1) evaluate the comparative effectiveness of usual care and JUMPSTART- ANAI, a culturally tailored ACP communication intervention, for prompting patient-driven ACP conversations between ANAI adults and primary care providers and to (1) identify key factors to successfully implement the intervention in health systems serving ANAI adults with serious illness.

Jumpstarting Culturally-informed Advance Care Planning With ANAI People in Primary Care

Jumpstarting Advance Care Planning With ANAI People

Condition
Advance Care Planning
Intervention / Treatment

-

Contacts and Locations

Anchorage

Southcentral Foundation, Anchorage, Alaska, United States, 99508

Participation Criteria

Researchers look for people who fit a certain description, called eligibility criteria. Some examples of these criteria are a person's general health condition or prior treatments.

For general information about clinical research, read Learn About Studies.

Eligibility Criteria

  • * Alaska Native and/or American Indian
  • * Age 40 or older
  • * Empaneled to a Southcentral Foundation primary care provider
  • * Diagnosed with at least 1 serious illness (e.g., cancer, COPD, kidney disease)
  • * Has made 2 or more to primary care in last 12 months
  • * No Advance Directive documented in electronic health record
  • * Cognitive impairment (≥ 2 errors) as assessed by the validated Short Portable Mental Status Questionnaire
  • * Not able to complete 30-minute study visit by phone or in person

Ages Eligible for Study

40 Years to

Sexes Eligible for Study

ALL

Accepts Healthy Volunteers

No

Collaborators and Investigators

Southcentral Foundation,

Jennifer Shaw, PhD, PRINCIPAL_INVESTIGATOR, University of Alaska Fairbanks

Study Record Dates

2027-05-30