RECRUITING

STELLA-FTD: Examination of a Behavior Change Intervention for FTD Family Care Partners

Description

The purpose of this nationwide study is to test STELLA-FTD (Support via Telehealth: Living and Learning with Advancing Alzheimer's Disease)-FTD, an intervention to specifically address the needs of family Care Partners of persons with frontotemporal degeneration (FTD). STELLA-FTD is a multicomponent video-conference based intervention designed to facilitate effective use of community and peer resources to foster effective management of behavioral and psychological symptoms of dementia. The study is recruiting families from across the US.

Study Overview

Study Details

Study overview

The purpose of this nationwide study is to test STELLA-FTD (Support via Telehealth: Living and Learning with Advancing Alzheimer's Disease)-FTD, an intervention to specifically address the needs of family Care Partners of persons with frontotemporal degeneration (FTD). STELLA-FTD is a multicomponent video-conference based intervention designed to facilitate effective use of community and peer resources to foster effective management of behavioral and psychological symptoms of dementia. The study is recruiting families from across the US.

STELLA-FTD: Examination of a Behavior Change Intervention for FTD Family Care Partners

STELLA-FTD: Examination of a Behavior Change Intervention for FTD Family Care Partners

Condition
Frontotemporal Dementia
Intervention / Treatment

-

Contacts and Locations

Portland

Oregon Health & Science University, Portland, Oregon, United States, 97239

Participation Criteria

Researchers look for people who fit a certain description, called eligibility criteria. Some examples of these criteria are a person's general health condition or prior treatments.

For general information about clinical research, read Learn About Studies.

Eligibility Criteria

  • * Adult caring for family member with FTD.
  • * Provides 4 or more hours of care/week. Does not have to reside with.
  • * Identifies at least 2 moderately upsetting behaviors in the person with FTD.
  • * Speaks and understands English to be able to participate in intervention.
  • * Owns a telephone (smartphone, cell phone or landline).
  • * Has email and mailing address to receive computer, study materials and surveys.
  • * Provides informed consent to participate in the research.
  • * Lives in the US
  • * No Frontotemporal Degeneration diagnosis.
  • * Unable to leave Care Partner during STELLA-FTD sessions.
  • * Enrolled in hospice.

Ages Eligible for Study

18 Years to 100 Years

Sexes Eligible for Study

ALL

Accepts Healthy Volunteers

Yes

Collaborators and Investigators

Oregon Health and Science University,

Allison Lindauer, PhD, APRN, PRINCIPAL_INVESTIGATOR, Oregon Health and Science University

Aimee Mooney, MA, CCC-SLP, STUDY_DIRECTOR, Oregon Health and Science University

Study Record Dates

2029-06