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Showing 1-1 of 1 trials for Mucopolysaccharidosis-iv-a
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Registry of Patients Diagnosed With Lysosomal Storage Diseases

California · San Francisco, CA

This is an international prospective and retrospective registry of patients with Lysosomal Storage Diseases (LSDs) to understand the natural history of the disease and the outcomes of fetal therapies, with the overall goal of improving the prenatal management of patients with LSDs.