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Showing 1-1 of 1 trials for Tarui-disease
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Rare Glycogen Storage Diseases Natural History Study

North Carolina · Durham, NC

The purpose of this study is to collect and study key medical data about several ultra-rare GSDs (Glycogen Storage Diseases) including, but not limited to, GSD types 0a, 0b, VII, X, XII, XIII, XV, PRKAG2 syndrome and Danon disease.