RECRUITING

Modifiable Variables in Parkinsonism (MVP)

Study Overview

This clinical trial focuses on testing the efficacy of different digital interventions to promote re-engagement in cancer-related long-term follow-up care for adolescent and young adult (AYA) survivors of childhood cancer.

Description

We are trying to identify factors associated with improved quality of life and fewer PD symptoms. We are attempting to identify practices, beliefs, and therapies used by individuals who report excellent quality of life, few PD symptoms, and reduced rates of progression. After agreeing to participate, we will ask participants to fill our questionnaires about their experience with PD, their health in general, along with their food intake every six months for five years.

Official Title

Modifiable Variables in Parkinsonism (MVP) [Formerly CAM Care in PD]

Quick Facts

Study Start:2012-09
Study Completion:2030-12
Study Type:Not specified
Phase:Not Applicable
Enrollment:Not specified
Status:RECRUITING

Study ID

NCT02194816

Participation Criteria

Researchers look for people who fit a certain description, called eligibility criteria. Some examples of these criteria are a person's general health condition or prior treatments.

Ages Eligible for Study:19 Years
Sexes Eligible for Study:ALL
Accepts Healthy Volunteers:No
Standard Ages:ADULT, OLDER_ADULT
Inclusion CriteriaExclusion Criteria
  1. * Parkinson's disease (PD)
  2. * Parkinsonism
  3. * Parkinson-plus syndromes (e.g. Multiple System Atrophy (MSA), Progressive Supranuclear Palsy (PSP), Corticobasal degeneration (CBGD), Dementia with Lewy bodies)
  4. * Must have online access, an email address, basic computer literacy
  5. * Must be willing to complete online surveys every 6 months for 5 years
  1. * Inability to read/write English
  2. * Inability or unwillingness to complete surveys every six (6) months (\~90 min)

Contacts and Locations

Study Contact

Research Assistant
CONTACT
425-602-3306
neuroresearch@bastyr.edu

Principal Investigator

Laurie K Mischley, ND, PhD, MPH
PRINCIPAL_INVESTIGATOR
Bastyr University

Study Locations (Sites)

Bastyr University
Kenmore, Washington, 98028
United States

Collaborators and Investigators

Sponsor: Bastyr University

  • Laurie K Mischley, ND, PhD, MPH, PRINCIPAL_INVESTIGATOR, Bastyr University

Study Record Dates

These dates track the progress of study record and summary results submissions to ClinicalTrials.gov. Study records and reported results are reviewed by the National Library of Medicine (NLM) to make sure they meet specific quality control standards before being posted on the public website.

Study Registration Dates

Study Start Date2012-09
Study Completion Date2030-12

Study Record Updates

Study Start Date2012-09
Study Completion Date2030-12

Terms related to this study

Keywords Provided by Researchers

  • Parkinson's Disease
  • PD
  • Complementary and Alternative
  • CAM

Additional Relevant MeSH Terms

  • Parkinson's Disease
  • Parkinsonism
  • MSA - Multiple System Atrophy
  • Progressive Supranuclear Palsy
  • Shy-Drager Syndrome
  • Corticobasal Degeneration
  • Dementia With Lewy Bodies
  • Pick Disease
  • Olivopontocerebellar Atrophies