Modifiable Variables in Parkinsonism (MVP)

Description

We are trying to identify factors associated with improved quality of life and fewer PD symptoms. We are attempting to identify practices, beliefs, and therapies used by individuals who report excellent quality of life, few PD symptoms, and reduced rates of progression. After agreeing to participate, we will ask participants to fill our questionnaires about their experience with PD, their health in general, along with their food intake every six months for five years.

Conditions

Parkinson's Disease, Parkinsonism, MSA - Multiple System Atrophy, Progressive Supranuclear Palsy, Shy-Drager Syndrome, Corticobasal Degeneration, Dementia With Lewy Bodies, Pick Disease, Olivopontocerebellar Atrophies

Study Overview

Study Details

Study overview

We are trying to identify factors associated with improved quality of life and fewer PD symptoms. We are attempting to identify practices, beliefs, and therapies used by individuals who report excellent quality of life, few PD symptoms, and reduced rates of progression. After agreeing to participate, we will ask participants to fill our questionnaires about their experience with PD, their health in general, along with their food intake every six months for five years.

Modifiable Variables in Parkinsonism (MVP) [Formerly CAM Care in PD]

Modifiable Variables in Parkinsonism (MVP)

Condition
Parkinson's Disease
Intervention / Treatment

-

Contacts and Locations

Kenmore

Bastyr University, Kenmore, Washington, United States, 98028

Participation Criteria

Researchers look for people who fit a certain description, called eligibility criteria. Some examples of these criteria are a person's general health condition or prior treatments.

For general information about clinical research, read Learn About Studies.

Eligibility Criteria

  • * Parkinson's disease (PD)
  • * Parkinsonism
  • * Parkinson-plus syndromes (e.g. Multiple System Atrophy (MSA), Progressive Supranuclear Palsy (PSP), Corticobasal degeneration (CBGD), Dementia with Lewy bodies)
  • * Must have online access, an email address, basic computer literacy
  • * Must be willing to complete online surveys every 6 months for 5 years
  • * Inability to read/write English
  • * Inability or unwillingness to complete surveys every six (6) months (\~90 min)

Ages Eligible for Study

19 Years to

Sexes Eligible for Study

ALL

Accepts Healthy Volunteers

No

Collaborators and Investigators

Bastyr University,

Laurie K Mischley, ND, PhD, MPH, PRINCIPAL_INVESTIGATOR, Bastyr University

Study Record Dates

2030-12