RECRUITING

Hereditary Risk Factors for Thyroid Cancer

Study Overview

This clinical trial focuses on testing the efficacy of different digital interventions to promote re-engagement in cancer-related long-term follow-up care for adolescent and young adult (AYA) survivors of childhood cancer.

Description

Thyroid cancers can occur sporadically, but can also be found as tumors that cluster in families with other cancers or genetic syndromes. Researchers are studying thyroid cancer in children and families, with a particular interest in understanding genes and other factors that may put individuals at risk for developing thyroid cancer and thyroid nodules. * In this study, family and medical history information is collected alongside a blood or saliva sample for genetic studies. * Individuals with a past or present childhood thyroid cancer/nodule or a thyroid cancer suspected to be inherited in their family are invited to participate.

Official Title

Hereditary Risk Factors for Thyroid Cancer

Quick Facts

Study Start:2016-03-01
Study Completion:2029-03-01
Study Type:Not specified
Phase:Not Applicable
Enrollment:Not specified
Status:RECRUITING

Study ID

NCT02747888

Participation Criteria

Researchers look for people who fit a certain description, called eligibility criteria. Some examples of these criteria are a person's general health condition or prior treatments.

Ages Eligible for Study:Not specified
Sexes Eligible for Study:ALL
Accepts Healthy Volunteers:Yes
Standard Ages:CHILD, ADULT, OLDER_ADULT
Inclusion CriteriaExclusion Criteria
  1. * Individual pediatric patient with current or previous known or suspected thyroid cancer or nodule(s).
  2. * Individual adult patient with current or previous known or suspected thyroid cancer or nodule(s) if they come from a family with a high suspicion of hereditary cancer (as below).
  3. * Individuals from families with a high suspicion of hereditary thyroid cancer:
  4. * Families with a current or previous diagnosis of a thyroid cancer/nodule occurring in childhood (\<18 years old).
  5. * Families with a high suspicion of hereditary thyroid cancer/nodules other than above to include:
  6. * Families with thyroid cancer in multiple individuals
  7. * Families with thyroid cancer and a known genetic syndrome
  8. * Families with thyroid cancer and a suspected genetic syndrome (e.g. multiple childhood cancers in the family, multiple primary cancers, multiple endocrinopathies, etc.)
  1. * Individuals who are unable to give informed consent.
  2. * Individuals who are unable to complete study materials.

Contacts and Locations

Study Contact

Junne Kamihara, MD, PhD
CONTACT
617.632.3044
junne_kamihara@dfci.harvard.edu
Sarah Hunt, MPH
CONTACT
sarah_hunt@dfci.harvard.edu

Principal Investigator

Junne Kamihara, MD, PhD
PRINCIPAL_INVESTIGATOR
Dana-Farber Cancer Institute

Study Locations (Sites)

Dana Farber Cancer Institute
Boston, Massachusetts, 02115
United States

Collaborators and Investigators

Sponsor: Dana-Farber Cancer Institute

  • Junne Kamihara, MD, PhD, PRINCIPAL_INVESTIGATOR, Dana-Farber Cancer Institute

Study Record Dates

These dates track the progress of study record and summary results submissions to ClinicalTrials.gov. Study records and reported results are reviewed by the National Library of Medicine (NLM) to make sure they meet specific quality control standards before being posted on the public website.

Study Registration Dates

Study Start Date2016-03-01
Study Completion Date2029-03-01

Study Record Updates

Study Start Date2016-03-01
Study Completion Date2029-03-01

Terms related to this study

Keywords Provided by Researchers

  • Thyroid

Additional Relevant MeSH Terms

  • Thyroid Cancer