RECRUITING

National Collaborative to Improve Care of Children With Complex Congenital Heart Disease

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Conditions

Hypoplastic Left Heart Syndrome (HLHS)

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Study Overview

This clinical trial focuses on testing the efficacy of different digital interventions to promote re-engagement in cancer-related long-term follow-up care for adolescent and young adult (AYA) survivors of childhood cancer.

Description

The purpose of this initiative is to improve care and outcomes for infants with HLHS by expanding the NPC-QIC national registry to gather clinical care process, outcome, and developmental data on infants with HLHS between diagnosis and 12 months of age, by improving the use of standards into everyday practice across pediatric cardiology centers, and by engaging parents as partners in the process.

Official Title

National Pediatric Cardiology Quality Improvement Collaborative (NPC-QIC) - A Collaborative Initiative to Improve Care of Children With Complex Congenital Heart Disease

Quick Facts

Study Start:2016-05
Study Completion:2028-05
Study Type:Not specified
Phase:Not Applicable
Enrollment:Not specified
Status:RECRUITING

Study ID

NCT02852031

Participation Criteria

Researchers look for people who fit a certain description, called eligibility criteria. Some examples of these criteria are a person's general health condition or prior treatments.

Ages Eligible for Study:Not specified to 15 Months
Sexes Eligible for Study:ALL
Accepts Healthy Volunteers:No
Standard Ages:CHILD
Inclusion CriteriaExclusion Criteria
  1. * Fetuses or newborns diagnosed with HLHS or other univentricular condition
  2. * Intended to undergo Norwood procedure
  1. * None

Contacts and Locations

Study Contact

Mark Timbers
CONTACT
mark.timbers@cchmc.org

Principal Investigator

Garick Hill, MD
PRINCIPAL_INVESTIGATOR
Cininnati Children's Hospital Medical Center

Study Locations (Sites)

Children's of Alabama
Birmingham, Alabama, 35233
United States
Phoenix Children's Hospital
Phoenix, Arizona, 85006
United States
Arkansas Children's Hospital
Little Rock, Arkansas, 72202
United States
Children's Hospital Los Angeles
Los Angeles, California, 90027
United States
UCLA Mattel Children's Hospital
Los Angeles, California, 90095
United States
Lucile Packard Children's Hospital-Stanford
Palo Alto, California, 94304
United States
Sutter Medical Center-Sacramento
Sacramento, California, 95816
United States
UC Davis Children's Hospital
Sacramento, California, 95817
United States
Rady Children's Hospital
San Diego, California, 92123
United States
Children's Hospital Colorado
Aurora, Colorado, 80045
United States
Nemours Cardiac Center, A.I DuPont Hospital for Children
Wilmington, Delaware, 19803
United States
Children's National Medical Center
Washington, District of Columbia, 20010
United States
University of Florida-UF Health
Gainesville, Florida, 32606
United States
Nicklaus Children's Hospital
Miami, Florida, 33155
United States
Arnold Palmer Children's Hospital
Orlando, Florida, 32806
United States
Johns Hopkins All Children's Hospital
Saint Petersburg, Florida, 33701
United States
Children's Healthcare of Atlanta
Atlanta, Georgia, 30322
United States
Ann and Robert H. Lurie Children's Hospital of Chicago
Chicago, Illinois, 60611
United States
Advocate Children's Hospital
Oak Lawn, Illinois, 60453
United States
Riley Hospital for Children at IU Health
Indianapolis, Indiana, 46202
United States
University of Iowa Children's Hospital
Iowa City, Iowa, 52242
United States
Norton Children's Hospital
Louisville, Kentucky, 40202
United States
Ochsner Hospital For Children
Jefferson, Louisiana, 70121
United States
Children's Hospital New Orleans
New Orleans, Louisiana, 70118
United States
University of Maryland Children's Hospital
Baltimore, Maryland, 21201
United States
Boston Children's Hospital
Boston, Massachusetts, 02115
United States
University of Michigan C.S. Mott Children's Hospital
Ann Arbor, Michigan, 48109
United States
Children's Hospital and Clinics of Minnesota
Minneapolis, Minnesota, 55404
United States
University of Minnesota Masonic Children's Hospital
Minneapolis, Minnesota, 55454
United States
Batson Children's Hospital-University of Mississippi Medical Center
Jackson, Mississippi, 39216
United States
Children's Mercy Hospitals and Clinics
Kansas City, Missouri, 64108
United States
St. Louis Children's Hospital
Saint Louis, Missouri, 63110
United States
Children's Hospital and Medical Center-Omaha
Omaha, Nebraska, 68114
United States
The Children's Hospital of Montefiore
Bronx, New York, 10467
United States
Cohen Children's Medical Center Northwell Health
New Hyde Park, New York, 11040
United States
NYU Medical Center
New York, New York, 10016
United States
Columbia University- NY Presbyterian
New York, New York, 10032
United States
University of Rochester Medical Center
Rochester, New York, 14642
United States
Levine Children's Hospital-Sanger Heart and Vascular Institute
Charlotte, North Carolina, 28203
United States
Duke University Medical Center
Durham, North Carolina, 27705
United States
Akron Children's Hospital
Akron, Ohio, 44308
United States
Cincinnati Children's Hospital
Cincinnati, Ohio, 45229
United States
University Hospitals Case Medical Center - Rainbow Babies & Children's Hospital, Pediatric Heart Center
Cleveland, Ohio, 44092
United States
Cleveland Clinic Children's Hospital
Cleveland, Ohio, 44195
United States
Nationwide Children's Hospital
Columbus, Ohio, 43023
United States
Doernbecher Children's Hospital
Portland, Oregon, 97239
United States
PennState Hershey Medical Center--PennState Health Children's Hospital
Harrisburg, Pennsylvania, 22908
United States
Children's Hospital of Philadelphia
Philadelphia, Pennsylvania, 19104
United States
Children's Hospital of Pittsburgh of UPMC
Pittsburgh, Pennsylvania, 15224
United States
Medical University of South Carolina
Charleston, South Carolina, 29425
United States
Le Bonheur Children's Hospital
Memphis, Tennessee, 38103
United States
Monroe Carell Jr. Children's Hospital at Vanderbilt
Nashville, Tennessee, 37232
United States
Children's Medical Center of Dallas
Dallas, Texas, 75235
United States
Cook Childrens Medical Center
Fort Worth, Texas, 76104
United States
Texas Children's Hospital
Houston, Texas, 77030
United States
Primary Children's Hospital
Salt Lake City, Utah, 84113
United States
UVA Children's Hospital
Charlottesville, Virginia, 22908
United States
Inova Children's Hospital
Falls Church, Virginia, 22042
United States
Seattle Children's Hospital
Seattle, Washington, 98105
United States
University of Wisconsin, American Family Children's
Madison, Wisconsin, 53792
United States
Children's Hospital of Wisconsin
Milwaukee, Wisconsin, 53201
United States

Collaborators and Investigators

Sponsor: Children's Hospital Medical Center, Cincinnati

  • Garick Hill, MD, PRINCIPAL_INVESTIGATOR, Cininnati Children's Hospital Medical Center

Study Record Dates

These dates track the progress of study record and summary results submissions to ClinicalTrials.gov. Study records and reported results are reviewed by the National Library of Medicine (NLM) to make sure they meet specific quality control standards before being posted on the public website.

Study Registration Dates

Study Start Date2016-05
Study Completion Date2028-05

Study Record Updates

Study Start Date2016-05
Study Completion Date2028-05

Terms related to this study

Additional Relevant MeSH Terms

  • Hypoplastic Left Heart Syndrome (HLHS)