The purpose of this initiative is to improve care and outcomes for infants with HLHS by expanding the NPC-QIC national registry to gather clinical care process, outcome, and developmental data on infants with HLHS between diagnosis and 12 months of age, by improving the use of standards into everyday practice across pediatric cardiology centers, and by engaging parents as partners in the process.
Hypoplastic Left Heart Syndrome (HLHS)
The purpose of this initiative is to improve care and outcomes for infants with HLHS by expanding the NPC-QIC national registry to gather clinical care process, outcome, and developmental data on infants with HLHS between diagnosis and 12 months of age, by improving the use of standards into everyday practice across pediatric cardiology centers, and by engaging parents as partners in the process.
National Collaborative to Improve Care of Children With Complex Congenital Heart Disease
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Children's of Alabama, Birmingham, Alabama, United States, 35233
Phoenix Children's Hospital, Phoenix, Arizona, United States, 85006
Arkansas Children's Hospital, Little Rock, Arkansas, United States, 72202
Children's Hospital Los Angeles, Los Angeles, California, United States, 90027
UCLA Mattel Children's Hospital, Los Angeles, California, United States, 90095
Lucile Packard Children's Hospital-Stanford, Palo Alto, California, United States, 94304
Sutter Medical Center-Sacramento, Sacramento, California, United States, 95816
UC Davis Children's Hospital, Sacramento, California, United States, 95817
Rady Children's Hospital, San Diego, California, United States, 92123
Children's Hospital Colorado, Aurora, Colorado, United States, 80045
Researchers look for people who fit a certain description, called eligibility criteria. Some examples of these criteria are a person's general health condition or prior treatments.
For general information about clinical research, read Learn About Studies.
to 15 Months
ALL
No
Children's Hospital Medical Center, Cincinnati,
Garick Hill, MD, PRINCIPAL_INVESTIGATOR, Cininnati Children's Hospital Medical Center
2028-05