RECRUITING

Pulmonary Hypertension Biorepository and Registry

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Conditions

Pulmonary HypertensionPulmonary Arterial HypertensionPulmonary Hypertension Due to Left Heart DiseasePulmonary Hypertension, PrimaryPulmonary Hypertension Due to Lung Diseases and HypoxiaPulmonary Hypertension, Primary, 4Pulmonary Hypertension, Primary, 2Pulmonary Hypertension, Primary, 3Chronic Thromboembolic Pulmonary Hypertension

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Study Overview

This clinical trial focuses on testing the efficacy of different digital interventions to promote re-engagement in cancer-related long-term follow-up care for adolescent and young adult (AYA) survivors of childhood cancer.

Description

Establish a pulmonary hypertension registry and biorepository to lead towards a further understanding of the disease.

Official Title

Pulmonary Hypertension Biorepository and Registry

Quick Facts

Study Start:2020-08-10
Study Completion:2027-07-31
Study Type:Not specified
Phase:Not Applicable
Enrollment:Not specified
Status:RECRUITING

Study ID

NCT04808596

Participation Criteria

Researchers look for people who fit a certain description, called eligibility criteria. Some examples of these criteria are a person's general health condition or prior treatments.

Ages Eligible for Study:18 Years
Sexes Eligible for Study:ALL
Accepts Healthy Volunteers:Not specified
Standard Ages:ADULT, OLDER_ADULT
Inclusion CriteriaExclusion Criteria
  1. 1. The participant is a patient at TUKHS or has agreed to participate in a study approved by the KUMC Human Research Protection Program (HRPP)
  2. 2. The participant has a diagnosis of pulmonary hypertension confirmed by right heart catheterization
  3. 3. Patient is ≥ 18 years of age or older
  1. 1. Participant declines to participate (living patients only)
  2. 2. Participant is unable to provide informed consent (living patients only)

Contacts and Locations

Study Contact

Luigi R Boccardi, MPH
CONTACT
9135884022
lboccardi@kumc.edu
Kimberly Cygan
CONTACT
kcygan@kumc.edu

Principal Investigator

Leslie A Spikes, MD
PRINCIPAL_INVESTIGATOR
Assistant Professor of Medicine
Luigi R Boccardi, MPH
STUDY_DIRECTOR
Director of Pulmonary Research

Study Locations (Sites)

University of Kansas Medical Center
Kansas City, Kansas, 66160
United States

Collaborators and Investigators

Sponsor: University of Kansas Medical Center

  • Leslie A Spikes, MD, PRINCIPAL_INVESTIGATOR, Assistant Professor of Medicine
  • Luigi R Boccardi, MPH, STUDY_DIRECTOR, Director of Pulmonary Research

Study Record Dates

These dates track the progress of study record and summary results submissions to ClinicalTrials.gov. Study records and reported results are reviewed by the National Library of Medicine (NLM) to make sure they meet specific quality control standards before being posted on the public website.

Study Registration Dates

Study Start Date2020-08-10
Study Completion Date2027-07-31

Study Record Updates

Study Start Date2020-08-10
Study Completion Date2027-07-31

Terms related to this study

Additional Relevant MeSH Terms

  • Pulmonary Hypertension
  • Pulmonary Arterial Hypertension
  • Pulmonary Hypertension Due to Left Heart Disease
  • Pulmonary Hypertension, Primary
  • Pulmonary Hypertension Due to Lung Diseases and Hypoxia
  • Pulmonary Hypertension, Primary, 4
  • Pulmonary Hypertension, Primary, 2
  • Pulmonary Hypertension, Primary, 3
  • Chronic Thromboembolic Pulmonary Hypertension