Pulmonary Hypertension Biorepository and Registry

Description

Establish a pulmonary hypertension registry and biorepository to lead towards a further understanding of the disease.

Conditions

Pulmonary Hypertension, Pulmonary Arterial Hypertension, Pulmonary Hypertension Due to Left Heart Disease, Pulmonary Hypertension, Primary, Pulmonary Hypertension Due to Lung Diseases and Hypoxia, Pulmonary Hypertension, Primary, 4, Pulmonary Hypertension, Primary, 2, Pulmonary Hypertension, Primary, 3, Chronic Thromboembolic Pulmonary Hypertension

Study Overview

Study Details

Study overview

Establish a pulmonary hypertension registry and biorepository to lead towards a further understanding of the disease.

Pulmonary Hypertension Biorepository and Registry

Pulmonary Hypertension Biorepository and Registry

Condition
Pulmonary Hypertension
Intervention / Treatment

-

Contacts and Locations

Kansas City

University of Kansas Medical Center, Kansas City, Kansas, United States, 66160

Participation Criteria

Researchers look for people who fit a certain description, called eligibility criteria. Some examples of these criteria are a person's general health condition or prior treatments.

For general information about clinical research, read Learn About Studies.

Eligibility Criteria

  • 1. The participant is a patient at TUKHS or has agreed to participate in a study approved by the KUMC Human Research Protection Program (HRPP)
  • 2. The participant has a diagnosis of pulmonary hypertension confirmed by right heart catheterization
  • 3. Patient is ≥ 18 years of age or older
  • 1. Participant declines to participate (living patients only)
  • 2. Participant is unable to provide informed consent (living patients only)

Ages Eligible for Study

18 Years to

Sexes Eligible for Study

ALL

Accepts Healthy Volunteers

No

Collaborators and Investigators

University of Kansas Medical Center,

Leslie A Spikes, MD, PRINCIPAL_INVESTIGATOR, Assistant Professor of Medicine

Luigi R Boccardi, MPH, STUDY_DIRECTOR, Director of Pulmonary Research

Study Record Dates

2027-07-31