Study Overview
This clinical trial focuses on testing the efficacy of different digital interventions to promote re-engagement in cancer-related long-term follow-up care for adolescent and young adult (AYA) survivors of childhood cancer.
Description
CATNAP is a patient registry designed to improve the understanding of the natural history of narcolepsy in pediatric patients. Descriptive statistics on disease characteristics will be performed.
The study has 16 active clinical sites and a virtual site that widens participation to anywhere in the United States. For more information about the study or to access the Online Patient Enrollment System, visit the CATNAP website: https://catnap.healthie.net/welcome or email catnap@pulseinfoframe.com. The Online Patient Enrollment System, CATNAP website, can also be found in the references section.
Official Title
Children, Adolescents and Their Providers: the Narcolepsy Assessment Partnership (CATNAPTM)
Quick Facts
Study Start:2020-10-10
Study Completion:2024-10-01
Study Type:Not specified
Phase:Not Applicable
Enrollment:Not specified
Status:RECRUITING
Participation Criteria
Researchers look for people who fit a certain description, called eligibility criteria. Some examples of these criteria are a person's general health condition or prior treatments.
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Contacts and Locations
Study Locations (Sites)
Phoenix Children's Hospital
Phoenix, Arizona, 85016
United States
University of Arizona
Tucson, Arizona, 85719
United States
University of Arkansas
Fayetteville, Arkansas, 72701
United States
Arkansas Children's Research Institute
Little Rock, Arkansas, 72202
United States
Stanford University
Redwood City, California, 94063
United States
University of California San Diego
San Diego, California, 92093
United States
Children's National Medical Center
Washington, District of Columbia, 20010
United States
Children's Research Institute
Washington, District of Columbia, 20010
United States
University of South Florida
Tampa, Florida, 33620
United States
Lurie Children's Hospital of Chicago
Chicago, Illinois, 60611
United States
Johns Hopkins University
Baltimore, Maryland, 21205
United States
Boston Children's Hospital
Boston, Massachusetts, 02115
United States
Trinity Health-Michigan
Grand Rapids, Michigan, 49503
United States
Mayo Clinic
Rochester, Michigan, 55905
United States
St. Luke's Hospital
Chesterfield, Missouri, 63017
United States
Children's Mercy Hospital
Kansas City, Missouri, 64108
United States
Northwell Health
Manhasset, New York, 11030
United States
Cincinnati Children's Hospital Medical Center
Cincinnati, Ohio, 45229
United States
University Hospitals Cleveland Medical Centre (UHCMC)
Cleveland, Ohio, 44106
United States
Nationwide Children's Hospital
Columbus, Ohio, 43205
United States
Ohio Sleep Medicine Institute
Dublin, Ohio, 43017
United States
Geisinger
Danville, Pennsylvania, 17822
United States
Children's Hospital of Philadelphia
Philadelphia, Pennsylvania, 19104
United States
Texas Children's Hospital (Baylor College of Medicine)
Houston, Texas, 77030
United States
Children's Hospital of the King's Daughters
Norfolk, Virginia, 23507
United States
Collaborators and Investigators
Sponsor: Jazz Pharmaceuticals
Study Record Dates
These dates track the progress of study record and summary results submissions to ClinicalTrials.gov. Study records and reported results are reviewed by the National Library of Medicine (NLM) to make sure they meet specific quality control standards before being posted on the public website.
Study Registration Dates
Study Start Date2020-10-10
Study Completion Date2024-10-01
Study Record Updates
Study Start Date2020-10-10
Study Completion Date2024-10-01
Terms related to this study
Additional Relevant MeSH Terms