Child and Adolescent Registry for Participants With Narcolepsy

Description

CATNAP is a patient registry designed to improve the understanding of the natural history of narcolepsy in pediatric patients. Descriptive statistics on disease characteristics will be performed. The study has 16 active clinical sites and a virtual site that widens participation to anywhere in the United States. For more information about the study or to access the Online Patient Enrollment System, visit the CATNAP website: https://catnap.healthie.net/welcome or email catnap@pulseinfoframe.com. The Online Patient Enrollment System, CATNAP website, can also be found in the references section.

Conditions

Narcolepsy

Study Overview

Study Details

Study overview

CATNAP is a patient registry designed to improve the understanding of the natural history of narcolepsy in pediatric patients. Descriptive statistics on disease characteristics will be performed. The study has 16 active clinical sites and a virtual site that widens participation to anywhere in the United States. For more information about the study or to access the Online Patient Enrollment System, visit the CATNAP website: https://catnap.healthie.net/welcome or email catnap@pulseinfoframe.com. The Online Patient Enrollment System, CATNAP website, can also be found in the references section.

Children, Adolescents and Their Providers: the Narcolepsy Assessment Partnership (CATNAPTM)

Child and Adolescent Registry for Participants With Narcolepsy

Condition
Narcolepsy
Intervention / Treatment

-

Contacts and Locations

Phoenix

Phoenix Children's Hospital, Phoenix, Arizona, United States, 85016

Tucson

University of Arizona, Tucson, Arizona, United States, 85719

Fayetteville

University of Arkansas, Fayetteville, Arkansas, United States, 72701

Little Rock

Arkansas Children's Research Institute, Little Rock, Arkansas, United States, 72202

Redwood City

Stanford University, Redwood City, California, United States, 94063

San Diego

University of California San Diego, San Diego, California, United States, 92093

Washington

Children's National Medical Center, Washington, District of Columbia, United States, 20010

Washington

Children's Research Institute, Washington, District of Columbia, United States, 20010

Tampa

University of South Florida, Tampa, Florida, United States, 33620

Chicago

Lurie Children's Hospital of Chicago, Chicago, Illinois, United States, 60611

Participation Criteria

Researchers look for people who fit a certain description, called eligibility criteria. Some examples of these criteria are a person's general health condition or prior treatments.

For general information about clinical research, read Learn About Studies.

Eligibility Criteria

  • * Any child or adolescent with a physician-confirmed diagnosis of narcolepsy
  • * Age less than 18 years
  • * Willing to participate in the Registry and complete the informed consent form
  • * Able to participate in English based registry
  • * Age 18 years or more
  • * Fail to complete the informed consent form

Ages Eligible for Study

to 17 Years

Sexes Eligible for Study

ALL

Accepts Healthy Volunteers

No

Collaborators and Investigators

Jazz Pharmaceuticals,

Study Record Dates

2024-10-01