COMPLETED

Pilot Testing Dementia-Enhanced Training and Tool for Home Hospice Clinicians

Study Overview

This clinical trial focuses on testing the efficacy of different digital interventions to promote re-engagement in cancer-related long-term follow-up care for adolescent and young adult (AYA) survivors of childhood cancer.

Description

The purpose of this study is to pilot test the feasibility, acceptability, and preliminary efficacy of a clinically useful, inclusive dementia-enhanced training and tool for use by home hospice clinicians to improve care and support for Black and White patients with dementia and their family caregivers. The investigators expect family caregivers of clinicians in the intervention group will report less caregiver burden (primary outcome) than caregivers of clinicians in the control group. The investigators expect that, compared to clinicians in the control group (usual care), clinicians in the intervention group (receive the training and use the tool) will demonstrate more knowledge of dementia-related caregiving issues (secondary outcomes). In exploratory analyses, the investigators expect family caregivers will report greater self-efficacy and preparedness, and that patients of clinicians in the intervention group will experience fewer live discharges than family caregivers of patients of clinicians in the control group.

Official Title

Study 3. Pilot Testing Feasibility, Acceptability, and Preliminary Efficacy of a Dementia-Enhanced Training and Tool for Home Hospice Clinicians in a Clinical Setting.

Quick Facts

Study Start:2023-10-06
Study Completion:2025-12-24
Study Type:Not specified
Phase:Not Applicable
Enrollment:Not specified
Status:COMPLETED

Study ID

NCT05719077

Participation Criteria

Researchers look for people who fit a certain description, called eligibility criteria. Some examples of these criteria are a person's general health condition or prior treatments.

Ages Eligible for Study:19 Years to 90 Years
Sexes Eligible for Study:ALL
Accepts Healthy Volunteers:Yes
Standard Ages:ADULT, OLDER_ADULT
Inclusion CriteriaExclusion Criteria
  1. * Individuals are not excluded from this study based on gender.
  2. * Based on proportion of hospice workforce and family caregivers that are female, we expect 70%-80% of participants will be female.
  3. * Nurse, social worker, or family member who provides care to persons(s) living with dementia enrolled in home hospice care.
  4. * 19-90 years old.
  5. * Can complete data collection in English.
  6. * Family Caregivers: identify as White or Black/African American.
  1. * Participant is less than 19 years old or older than 90 years old.
  2. * Does not provide care to person(s) living with dementia enrolled in home hospice.
  3. * Cannot complete data collection in English.
  4. * Family Caregiver does not identify as White or Black/African American.

Contacts and Locations

Principal Investigator

Elizabeth Luth, PhD
PRINCIPAL_INVESTIGATOR
Rutgers University

Study Locations (Sites)

Rutgers Univeristy
New Brunswick, New Jersey, 08901
United States

Collaborators and Investigators

Sponsor: Rutgers, The State University of New Jersey

  • Elizabeth Luth, PhD, PRINCIPAL_INVESTIGATOR, Rutgers University

Study Record Dates

These dates track the progress of study record and summary results submissions to ClinicalTrials.gov. Study records and reported results are reviewed by the National Library of Medicine (NLM) to make sure they meet specific quality control standards before being posted on the public website.

Study Registration Dates

Study Start Date2023-10-06
Study Completion Date2025-12-24

Study Record Updates

Study Start Date2023-10-06
Study Completion Date2025-12-24

Terms related to this study

Keywords Provided by Researchers

  • Dementia
  • End of life
  • Hospice
  • Caregiver Burden
  • Caregiving

Additional Relevant MeSH Terms

  • Alzheimer's Disease and Related Dementias