Pilot Testing Dementia-Enhanced Training and Tool for Home Hospice Clinicians

Description

The purpose of this study is to pilot test the feasibility, acceptability, and preliminary efficacy of a clinically useful, inclusive dementia-enhanced training and tool for use by home hospice clinicians to improve care and support for Black and White patients with dementia and their family caregivers. The investigators expect family caregivers of clinicians in the intervention group will report less caregiver burden (primary outcome) than caregivers of clinicians in the control group. The investigators expect that, compared to clinicians in the control group (usual care), clinicians in the intervention group (receive the training and use the tool) will demonstrate more knowledge of dementia-related caregiving issues (secondary outcomes). In exploratory analyses, the investigators expect family caregivers will report greater self-efficacy and preparedness, and that patients of clinicians in the intervention group will experience fewer live discharges than family caregivers of patients of clinicians in the control group.

Conditions

Alzheimer's Disease and Related Dementias

Study Overview

Study Details

Study overview

The purpose of this study is to pilot test the feasibility, acceptability, and preliminary efficacy of a clinically useful, inclusive dementia-enhanced training and tool for use by home hospice clinicians to improve care and support for Black and White patients with dementia and their family caregivers. The investigators expect family caregivers of clinicians in the intervention group will report less caregiver burden (primary outcome) than caregivers of clinicians in the control group. The investigators expect that, compared to clinicians in the control group (usual care), clinicians in the intervention group (receive the training and use the tool) will demonstrate more knowledge of dementia-related caregiving issues (secondary outcomes). In exploratory analyses, the investigators expect family caregivers will report greater self-efficacy and preparedness, and that patients of clinicians in the intervention group will experience fewer live discharges than family caregivers of patients of clinicians in the control group.

Study 3. Pilot Testing Feasibility, Acceptability, and Preliminary Efficacy of a Dementia-Enhanced Training and Tool for Home Hospice Clinicians in a Clinical Setting.

Pilot Testing Dementia-Enhanced Training and Tool for Home Hospice Clinicians

Condition
Alzheimer's Disease and Related Dementias
Intervention / Treatment

-

Contacts and Locations

New Brunswick

Rutgers Univeristy, New Brunswick, New Jersey, United States, 08901

Participation Criteria

Researchers look for people who fit a certain description, called eligibility criteria. Some examples of these criteria are a person's general health condition or prior treatments.

For general information about clinical research, read Learn About Studies.

Eligibility Criteria

  • * Individuals are not excluded from this study based on gender.
  • * Based on proportion of hospice workforce and family caregivers that are female, we expect 70%-80% of participants will be female.
  • * Nurse, social worker, or family member who provides care to persons(s) living with dementia enrolled in home hospice care.
  • * 19-90 years old.
  • * Can complete data collection in English.
  • * Family Caregivers: identify as White or Black/African American.
  • * Participant is less than 19 years old or older than 90 years old.
  • * Does not provide care to person(s) living with dementia enrolled in home hospice.
  • * Cannot complete data collection in English.
  • * Family Caregiver does not identify as White or Black/African American.

Ages Eligible for Study

19 Years to 90 Years

Sexes Eligible for Study

ALL

Accepts Healthy Volunteers

Yes

Collaborators and Investigators

Rutgers, The State University of New Jersey,

Elizabeth Luth, PhD, PRINCIPAL_INVESTIGATOR, Rutgers University

Study Record Dates

2026-02-28