RECRUITING

Caregivers Preparing for Their Own Health Care Emergency

Description

The proposed research will develop and test an online Emergency Preparedness Toolkit to help caregivers prepare for their own unexpected health events. Caregivers of persons with dementia often ignore their own health needs as their primary focus is the care of the person with dementia. This can lead to a caregiver delaying their own care and subsequently emergent health events. The Emergency Preparedness Toolkit provides guidance to the caregiver as to how to identify and transfer care to a standby caregiver. The goal is to provide a caregiver with the security and comfort that the person with dementia will be well cared for while they care for their own health needs.

Study Overview

Study Details

Study overview

The proposed research will develop and test an online Emergency Preparedness Toolkit to help caregivers prepare for their own unexpected health events. Caregivers of persons with dementia often ignore their own health needs as their primary focus is the care of the person with dementia. This can lead to a caregiver delaying their own care and subsequently emergent health events. The Emergency Preparedness Toolkit provides guidance to the caregiver as to how to identify and transfer care to a standby caregiver. The goal is to provide a caregiver with the security and comfort that the person with dementia will be well cared for while they care for their own health needs.

Piloting an Online Emergency Preparedness Toolkit for Caregivers Preparing for Their Own Health Care Emergency

Caregivers Preparing for Their Own Health Care Emergency

Condition
Dementia
Intervention / Treatment

-

Contacts and Locations

Sacramento

University of California - Davis, Sacramento, California, United States, 95817

Participation Criteria

Researchers look for people who fit a certain description, called eligibility criteria. Some examples of these criteria are a person's general health condition or prior treatments.

For general information about clinical research, read Learn About Studies.

Eligibility Criteria

  • * Must be 18 years of age or older at the time of signing the informed consent
  • * Must self-identify as the spouse or partner of the PWD
  • * Must provide some caregiving to a PWD
  • * Must live in the same dwelling as the PWD
  • * Diagnosis of dementia
  • * Unable to use or does not have access to a computer
  • * Complete deafness or blindness and/or unable to use a telephone
  • * Condition that prevents them from performing caregiving duties or providing physical/emotional support to the PWD
  • * Unable to follow directions
  • * Unable to read or write in English
  • * Participation in prior study involving the EPT

Ages Eligible for Study

18 Years to

Sexes Eligible for Study

ALL

Accepts Healthy Volunteers

No

Collaborators and Investigators

University of California, Davis,

Rebecca S Boxer, MD, MS, PRINCIPAL_INVESTIGATOR, University of California, Davis

Study Record Dates

2026-06