RECRUITING

Caregivers Preparing for Their Own Health Care Emergency

Study Overview

This clinical trial focuses on testing the efficacy of different digital interventions to promote re-engagement in cancer-related long-term follow-up care for adolescent and young adult (AYA) survivors of childhood cancer.

Description

The proposed research will develop and test an online Emergency Preparedness Toolkit to help caregivers prepare for their own unexpected health events. Caregivers of persons with dementia often ignore their own health needs as their primary focus is the care of the person with dementia. This can lead to a caregiver delaying their own care and subsequently emergent health events. The Emergency Preparedness Toolkit provides guidance to the caregiver as to how to identify and transfer care to a standby caregiver. The goal is to provide a caregiver with the security and comfort that the person with dementia will be well cared for while they care for their own health needs.

Official Title

Piloting an Online Emergency Preparedness Toolkit for Caregivers Preparing for Their Own Health Care Emergency

Quick Facts

Study Start:2025-07-01
Study Completion:2026-06
Study Type:Not specified
Phase:Not Applicable
Enrollment:Not specified
Status:RECRUITING

Study ID

NCT06635876

Participation Criteria

Researchers look for people who fit a certain description, called eligibility criteria. Some examples of these criteria are a person's general health condition or prior treatments.

Ages Eligible for Study:18 Years
Sexes Eligible for Study:ALL
Accepts Healthy Volunteers:No
Standard Ages:ADULT, OLDER_ADULT
Inclusion CriteriaExclusion Criteria
  1. * Must be 18 years of age or older at the time of signing the informed consent
  2. * Must self-identify as the spouse or partner of the PWD
  3. * Must provide some caregiving to a PWD
  4. * Must live in the same dwelling as the PWD
  1. * Diagnosis of dementia
  2. * Unable to use or does not have access to a computer
  3. * Complete deafness or blindness and/or unable to use a telephone
  4. * Condition that prevents them from performing caregiving duties or providing physical/emotional support to the PWD
  5. * Unable to follow directions
  6. * Unable to read or write in English
  7. * Participation in prior study involving the EPT

Contacts and Locations

Study Contact

Rebecca S Boxer, MD, MS
CONTACT
916-734-1748
GeriatricsResearch@health.ucdavis.edu

Principal Investigator

Rebecca S Boxer, MD, MS
PRINCIPAL_INVESTIGATOR
University of California, Davis

Study Locations (Sites)

University of California - Davis
Sacramento, California, 95817
United States

Collaborators and Investigators

Sponsor: University of California, Davis

  • Rebecca S Boxer, MD, MS, PRINCIPAL_INVESTIGATOR, University of California, Davis

Study Record Dates

These dates track the progress of study record and summary results submissions to ClinicalTrials.gov. Study records and reported results are reviewed by the National Library of Medicine (NLM) to make sure they meet specific quality control standards before being posted on the public website.

Study Registration Dates

Study Start Date2025-07-01
Study Completion Date2026-06

Study Record Updates

Study Start Date2025-07-01
Study Completion Date2026-06

Terms related to this study

Additional Relevant MeSH Terms

  • Dementia
  • Caregiver Burden