RECRUITING

Patient and Caregiver Priorities in Neuro-oncology Care

Description

This study is being done to identify patient and caregiver burdens regarding their experience with diagnosis and treatment of CNS tumors. These results will help doctors find areas where patients and caregivers may need more support.

Conditions

Malignant Central Nervous System NeoplasmMetastatic Malignant Neoplasm in the Central Nervous System
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Related Conditions:

Malignant Central Nervous System NeoplasmMetastatic Malignant Neoplasm in the Central Nervous System

Study Overview

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Study Details

Study overview

This study is being done to identify patient and caregiver burdens regarding their experience with diagnosis and treatment of CNS tumors. These results will help doctors find areas where patients and caregivers may need more support.

Patient and Caregiver Priorities in Neuro-Oncology Care

Patient and Caregiver Priorities in Neuro-oncology Care

Condition
Malignant Central Nervous System Neoplasm
Intervention / Treatment

-

Contacts and Locations

Rochester

Mayo Clinic in Rochester, Rochester, Minnesota, United States, 55905

Participation Criteria

Researchers look for people who fit a certain description, called eligibility criteria. Some examples of these criteria are a person's general health condition or prior treatments.

For general information about clinical research, read Learn About Studies.

Eligibility Criteria

  • * \* Age ≥ 18 years.
  • * Diagnosis of primary or metastatic CNS tumor with a primary caregiver, should patient wish to involve one.
  • * Willing and able to participate in a semi-structured interview lasting approximately 60 minutes. Dyad interviews conducted for participants who elect to involve a caregiver.
  • * Willing and able to participate in a single follow-up interview. Dyad follow up interviews conducted for participants who elect to involve a caregiver.
  • * \* Uncontrolled and/or intercurrent illness which limits participation in study interview.
  • * Vulnerable populations: pregnant or nursing persons, prisoners, or persons lacking capacity for understanding.
  • * Unable to read and speak English.
  • * Note: English does not need to be primary language.

Ages Eligible for Study

18 Years to

Sexes Eligible for Study

ALL

Accepts Healthy Volunteers

Yes

Collaborators and Investigators

Mayo Clinic,

Ugur T. Sener, MD, PRINCIPAL_INVESTIGATOR, Mayo Clinic in Rochester

Study Record Dates

2026-04-30