RECRUITING

Emphysema Research Registry and Biosample Repository

Study Overview

This clinical trial focuses on testing the efficacy of different digital interventions to promote re-engagement in cancer-related long-term follow-up care for adolescent and young adult (AYA) survivors of childhood cancer.

Description

The Comprehensive Lung Center (CLC) at the University of Pittsburgh Medical Center (UPMC Health System) provides patients with any type of breathing or lung disorder a full range of diagnostic and therapeutic services. The Emphysema/COPD Research Center (ECRC) is a specialty clinic, within this center, that attempts to advance the understanding of emphysema and to evaluate new therapies for patients with emphysema. The Emphysema Research Registry will enable pulmonary research physicians to: 1) gather information and create a research registry of people who have been diagnosed with emphysema; 2) utilize this research registry with the purpose of conducting research that attempts to advance the understanding of emphysema and to evaluate new therapies; and, 3) use the research registry to identify potential candidates for future research programs. These aims will be achieved by the collection of DNA (genetic material)for analysis and storage in addition to pulmonary function tests and other medical information.

Official Title

Emphysema Research Registry; Screening Study and Genetic Testing

Quick Facts

Study Start:2000-08
Study Completion:2030-07
Study Type:Not specified
Phase:Not Applicable
Enrollment:Not specified
Status:RECRUITING

Study ID

NCT00307281

Participation Criteria

Researchers look for people who fit a certain description, called eligibility criteria. Some examples of these criteria are a person's general health condition or prior treatments.

Ages Eligible for Study:21 Years
Sexes Eligible for Study:ALL
Accepts Healthy Volunteers:Yes
Standard Ages:ADULT, OLDER_ADULT
Inclusion CriteriaExclusion Criteria
  1. * Patients would be required to have COPD based on at least one of the following: clinical history, pulmonary function results, or radiographic results.
  1. * none

Contacts and Locations

Study Contact

Paula Consolaro, CCRC
CONTACT
412-692-4800
consolaropj@upmc.edu
Vera Iouchmanov, BS
CONTACT
412-864-3052
iouchmanovvl@upmc.edu

Principal Investigator

Frank C. Sciurba, MD
PRINCIPAL_INVESTIGATOR
University of Pittsburgh Medical Center

Study Locations (Sites)

University of Pittsburgh Emphysema/COPD Research Center
Pittsburgh, Pennsylvania, 15213
United States

Collaborators and Investigators

Sponsor: University of Pittsburgh

  • Frank C. Sciurba, MD, PRINCIPAL_INVESTIGATOR, University of Pittsburgh Medical Center

Study Record Dates

These dates track the progress of study record and summary results submissions to ClinicalTrials.gov. Study records and reported results are reviewed by the National Library of Medicine (NLM) to make sure they meet specific quality control standards before being posted on the public website.

Study Registration Dates

Study Start Date2000-08
Study Completion Date2030-07

Study Record Updates

Study Start Date2000-08
Study Completion Date2030-07

Terms related to this study

Additional Relevant MeSH Terms

  • Emphysema
  • Chronic Obstructive Pulmonary Disease
  • Chronic Bronchitis