Alport Syndrome Treatments and Outcomes Registry

Description

ASTOR's primary purpose is to enroll families and patients with a history of Alport syndrome in a central registry. The information we gather will be used as a basis for studies designed to test potential treatments for Alport syndrome. ASTOR also aims to provide patients, families and physicians with the most up-to-date information about Alport syndrome.

Conditions

Alport Syndrome

Study Overview

Study Details

Study overview

ASTOR's primary purpose is to enroll families and patients with a history of Alport syndrome in a central registry. The information we gather will be used as a basis for studies designed to test potential treatments for Alport syndrome. ASTOR also aims to provide patients, families and physicians with the most up-to-date information about Alport syndrome.

Alport Syndrome Treatments and Outcomes Registry

Alport Syndrome Treatments and Outcomes Registry

Condition
Alport Syndrome
Intervention / Treatment

-

Contacts and Locations

Minneapolis

University of Minnesota, Minneapolis, Minnesota, United States, 55455

Participation Criteria

Researchers look for people who fit a certain description, called eligibility criteria. Some examples of these criteria are a person's general health condition or prior treatments.

For general information about clinical research, read Learn About Studies.

Eligibility Criteria

    Ages Eligible for Study

    0 Years to 99 Years

    Sexes Eligible for Study

    ALL

    Accepts Healthy Volunteers

    No

    Collaborators and Investigators

    University of Minnesota,

    Clifford Kashtan, MD, PRINCIPAL_INVESTIGATOR, University of Minnesota, Department of Pediatrics

    Study Record Dates

    2030-01