RECRUITING

Duke Lupus Registry

Study Overview

This clinical trial focuses on testing the efficacy of different digital interventions to promote re-engagement in cancer-related long-term follow-up care for adolescent and young adult (AYA) survivors of childhood cancer.

Description

Lupus is a systemic autoimmune disease that can present with many varied symptoms, including joint pain, fevers, kidney disease, and rashes. Lupus can affect anyone, but it is most common in younger women. The Duke Lupus Registry will collect information and blood samples from patients with lupus (systemic lupus erythematosus or cutaneous lupus) seen in the Duke Rheumatology clinics. The goal of this Registry is to understand how lupus changes over time so that we can improve the treatment of patients with lupus.

Official Title

Duke Lupus Registry

Quick Facts

Study Start:2007-07
Study Completion:2027-06
Study Type:Not specified
Phase:Not Applicable
Enrollment:Not specified
Status:RECRUITING

Study ID

NCT00512694

Participation Criteria

Researchers look for people who fit a certain description, called eligibility criteria. Some examples of these criteria are a person's general health condition or prior treatments.

Ages Eligible for Study:18 Years
Sexes Eligible for Study:ALL
Accepts Healthy Volunteers:No
Standard Ages:ADULT, OLDER_ADULT
Inclusion CriteriaExclusion Criteria
  1. * Diagnosis of Systemic Lupus Erythematosus or Cutaneous Lupus
  2. * Patient of a rheumatologist at Duke University Medical Center
  1. * Inability to travel to Duke for follow-up visits
  2. * Inability to speak English
  3. * Not able to provide informed consent

Contacts and Locations

Study Contact

Laura Neil
CONTACT
(919) 684-8936
laura.k.neil@duke.edu

Principal Investigator

Megan E. B. Clowse, MD, MPH
PRINCIPAL_INVESTIGATOR
Duke University

Study Locations (Sites)

Duke University Medical Center
Durham, North Carolina, 27710
United States

Collaborators and Investigators

Sponsor: Duke University

  • Megan E. B. Clowse, MD, MPH, PRINCIPAL_INVESTIGATOR, Duke University

Study Record Dates

These dates track the progress of study record and summary results submissions to ClinicalTrials.gov. Study records and reported results are reviewed by the National Library of Medicine (NLM) to make sure they meet specific quality control standards before being posted on the public website.

Study Registration Dates

Study Start Date2007-07
Study Completion Date2027-06

Study Record Updates

Study Start Date2007-07
Study Completion Date2027-06

Terms related to this study

Keywords Provided by Researchers

  • Lupus
  • Systemic Lupus Erythematosus
  • Cutaneous Lupus

Additional Relevant MeSH Terms

  • Systemic Lupus Erythematosus
  • Cutaneous Lupus