RECRUITING

Retinoblastoma Survivor Study: Assessment of General Health and Quality of Life

Study Overview

This clinical trial focuses on testing the efficacy of different digital interventions to promote re-engagement in cancer-related long-term follow-up care for adolescent and young adult (AYA) survivors of childhood cancer.

Description

The purpose of this study is to find out about the quality of life and health in a group of adults who had retinoblastoma when they were children. By quality of life, we mean how you are feeling about being satisfied with things in your life, including your physical health, your emotional health, and your ability to carry out daily activities. We hope that this information will help us provide better care to future children with retinoblastoma and better follow-up care for survivors of retinoblastoma.

Official Title

Retinoblastoma Survivor Study: Assessment of General Health and Quality of Life

Quick Facts

Study Start:2008-03
Study Completion:2025-03
Study Type:Not specified
Phase:Not Applicable
Enrollment:Not specified
Status:RECRUITING

Study ID

NCT00639301

Participation Criteria

Researchers look for people who fit a certain description, called eligibility criteria. Some examples of these criteria are a person's general health condition or prior treatments.

Ages Eligible for Study:18 Years
Sexes Eligible for Study:ALL
Accepts Healthy Volunteers:No
Standard Ages:ADULT, OLDER_ADULT
Inclusion CriteriaExclusion Criteria
  1. * Patient diagnosed with retinoblastoma at any age
  2. * At least five years from completion of all retinoblastoma-directed therapy
  3. * Able to provide informed consent and/or assent, if indicated
  1. Pregnancy or breastfeeding
  2. Severe psychiatric disorders
  3. Active substance abuse
  4. Unstable medical conditions
  5. Inability to comply with study requirements

Contacts and Locations

Study Contact

Danielle Novetsky Friedman, MD
CONTACT
212-639-7376
David Abramson, MD
CONTACT
212-639-7232

Principal Investigator

Danielle Novetsky Friedman, MD
PRINCIPAL_INVESTIGATOR
Memorial Sloan Kettering Cancer Center

Study Locations (Sites)

Memorial Sloan Kettering Cancer Center
New York, New York, 10065
United States

Collaborators and Investigators

Sponsor: Memorial Sloan Kettering Cancer Center

  • Danielle Novetsky Friedman, MD, PRINCIPAL_INVESTIGATOR, Memorial Sloan Kettering Cancer Center

Study Record Dates

These dates track the progress of study record and summary results submissions to ClinicalTrials.gov. Study records and reported results are reviewed by the National Library of Medicine (NLM) to make sure they meet specific quality control standards before being posted on the public website.

Study Registration Dates

Study Start Date2008-03
Study Completion Date2025-03

Study Record Updates

Study Start Date2008-03
Study Completion Date2025-03

Terms related to this study

Keywords Provided by Researchers

  • Survivor
  • Quality of Life
  • Eye

Additional Relevant MeSH Terms

  • Retinoblastoma