International Pediatric Adrenocortical Tumor Registry

Description

This study aims to collect demographic and medical information including detailed family history of cancer of children and adolescents with adrenocortical tumors in order to learn more about the clinical and epidemiological aspects, treatment modalities, and outcome of patients with this rare disease, worldwide. In addition, investigators at St. Jude Children's Research Hospital (SJCRH) plan to perform molecular studies of tumor cells aimed to clarify the role of the TP53 gene and other genetic pathways in these tumors. They aim to obtain relevant biological material from participants with adrenocortical tumor (ACT), their biological parents, and relatives for determination of the TP53 germline status, molecular studies of the TP53 gene, and other molecular pathways.

Conditions

Adrenocortical Tumor

Study Overview

Study Details

Study overview

This study aims to collect demographic and medical information including detailed family history of cancer of children and adolescents with adrenocortical tumors in order to learn more about the clinical and epidemiological aspects, treatment modalities, and outcome of patients with this rare disease, worldwide. In addition, investigators at St. Jude Children's Research Hospital (SJCRH) plan to perform molecular studies of tumor cells aimed to clarify the role of the TP53 gene and other genetic pathways in these tumors. They aim to obtain relevant biological material from participants with adrenocortical tumor (ACT), their biological parents, and relatives for determination of the TP53 germline status, molecular studies of the TP53 gene, and other molecular pathways.

International Pediatric Adrenocortical Tumor Registry

International Pediatric Adrenocortical Tumor Registry

Condition
Adrenocortical Tumor
Intervention / Treatment

-

Contacts and Locations

Stanford

Stanford University, Stanford, California, United States, 94305

Saint Petersburg

All Children's Hospital/St. Petersburg Hospital, Saint Petersburg, Florida, United States, 33701

Dayton

The Children's Medical Center, Dayton, Ohio, United States, 45404

Memphis

St. Jude Children's Research Hospital, Memphis, Tennessee, United States, 38105

Fort Worth

Cook Children's Medical Center, Fort Worth, Texas, United States, 76104

Participation Criteria

Researchers look for people who fit a certain description, called eligibility criteria. Some examples of these criteria are a person's general health condition or prior treatments.

For general information about clinical research, read Learn About Studies.

Eligibility Criteria

    Ages Eligible for Study

    to 21 Years

    Sexes Eligible for Study

    ALL

    Accepts Healthy Volunteers

    No

    Collaborators and Investigators

    St. Jude Children's Research Hospital,

    Raul C Ribeiro, MD, PRINCIPAL_INVESTIGATOR, St. Jude Children's Research Hospital

    Study Record Dates

    2040-12