RECRUITING

Role of Genetics in Idiopathic Pulmonary Fibrosis (IPF)

Study Overview

This clinical trial focuses on testing the efficacy of different digital interventions to promote re-engagement in cancer-related long-term follow-up care for adolescent and young adult (AYA) survivors of childhood cancer.

Description

The purpose of this study is to investigate inherited genetic factors that play a role in the development of familial pulmonary fibrosis and to identify a group of genes that predispose individuals to develop pulmonary fibrosis. Finding the genes that cause pulmonary fibrosis is the first step at developing better methods for early diagnosis and improved treatment for pulmonary fibrosis. The overall hypothesis is that inherited genetic factors predispose individuals to develop pulmonary fibrosis.

Official Title

Role of Genetics in Idiopathic Pulmonary Fibrosis (IPF)

Quick Facts

Study Start:2008-07
Study Completion:2025-06
Study Type:Not specified
Phase:Not Applicable
Enrollment:Not specified
Status:RECRUITING

Study ID

NCT01088217

Participation Criteria

Researchers look for people who fit a certain description, called eligibility criteria. Some examples of these criteria are a person's general health condition or prior treatments.

Ages Eligible for Study:Not specified
Sexes Eligible for Study:ALL
Accepts Healthy Volunteers:No
Standard Ages:CHILD, ADULT, OLDER_ADULT
Inclusion CriteriaExclusion Criteria
  1. * Two or more family members with a clinical diagnosis of Idiopathic Pulmonary Fibrosis (IPF) or Idiopathic Interstitial Pneumonia (IIP)
  2. * Additional family members may be eligible to participate if two family members are suspected of or diagnosed as having Idiopathic Pulmonary Fibrosis (IPF) or Idiopathic Interstitial Pneumonia (IIP)
  1. * Individuals whose pulmonary fibrosis is due to a known cause rather than idiopathic
  2. * Individuals whose pulmonary fibrosis is due to a broader genetic syndrome

Contacts and Locations

Study Contact

Julie Powers, MHS
CONTACT
303-724-6539
julia.powers@ucdenver.edu
Janet Talbert, MS, CGC
CONTACT
1-800-423-8891
talbertj@njhealth.org

Principal Investigator

David A. Schwartz, MD
PRINCIPAL_INVESTIGATOR
University of Colorado Denver; National Jewish Health

Study Locations (Sites)

University of Colorado Denver
Aurora, Colorado, 80045
United States
National Jewish Health and University of Colorado Denver
Denver, Colorado, 80206
United States
Vanderbilt University
Nashville, Tennessee, 37232
United States

Collaborators and Investigators

Sponsor: National Jewish Health

  • David A. Schwartz, MD, PRINCIPAL_INVESTIGATOR, University of Colorado Denver; National Jewish Health

Study Record Dates

These dates track the progress of study record and summary results submissions to ClinicalTrials.gov. Study records and reported results are reviewed by the National Library of Medicine (NLM) to make sure they meet specific quality control standards before being posted on the public website.

Study Registration Dates

Study Start Date2008-07
Study Completion Date2025-06

Study Record Updates

Study Start Date2008-07
Study Completion Date2025-06

Terms related to this study

Keywords Provided by Researchers

  • Idiopathic Pulmonary Fibrosis
  • Familial Pulmonary Fibrosis
  • Idiopathic Interstitial Pneumonia
  • Familial Interstitial Pneumonia
  • Pulmonary Fibrosis

Additional Relevant MeSH Terms

  • Idiopathic Pulmonary Fibrosis
  • Familial Pulmonary Fibrosis
  • Idiopathic Interstitial Pneumonia
  • Familial Interstitial Pneumonia