ACTIVE_NOT_RECRUITING

The Longitudinal CONQUER Study of Rare Neuroimmunologic Disorders

Study Overview

This clinical trial focuses on testing the efficacy of different digital interventions to promote re-engagement in cancer-related long-term follow-up care for adolescent and young adult (AYA) survivors of childhood cancer.

Description

This study seeks to determine the biologic causes of inflammation in patients with Transverse Myelitis (TM) Neuromyelitis Optica Spectrum Disorder (NMOSD) and related conditions. While patients will be treated according to decisions with their treating physician, this study will collect data and samples from patients prospectively to gain a better understanding of the disease. We are seeking to understand why some patients respond to medications, while others do not. We also seek to understand what happens biologically, preceding relapses. Gathering these data and samples will allow researchers to identify new ways of diagnosing and treating these diseases. Data and samples will be shared with researchers around the world to support collaborative efforts to treat these conditions.

Official Title

Collaboration on Neuroimmunology: Question, Understand, Educate, Restore - The Longitudinal CONQUER Study of Rare Neuroimmunologic Disorders

Quick Facts

Study Start:2012-06
Study Completion:2030-06
Study Type:Not specified
Phase:Not Applicable
Enrollment:Not specified
Status:ACTIVE_NOT_RECRUITING

Study ID

NCT01623076

Participation Criteria

Researchers look for people who fit a certain description, called eligibility criteria. Some examples of these criteria are a person's general health condition or prior treatments.

Ages Eligible for Study:6 Years
Sexes Eligible for Study:ALL
Accepts Healthy Volunteers:Yes
Standard Ages:CHILD, ADULT, OLDER_ADULT
Inclusion CriteriaExclusion Criteria
  1. * Age 6 years or greater
  2. * Male or Female
  3. * Patient or Parent (in the case of a minor) able to give informed consent
  4. * For patients 10 to 17, patient able to assent
  5. * Patient diagnosed with NMO, NMOSD, TM or ON
  1. * Unable to maintain scheduled visits
  2. * Patient has known HIV or hepatitis C infection

Contacts and Locations

Principal Investigator

Benjamin M Greenberg, MD
PRINCIPAL_INVESTIGATOR
University of Texas Southwestern Medical Center

Study Locations (Sites)

The University of Texas Southwestern Medical Center
Dallas, Texas, 75390
United States

Collaborators and Investigators

Sponsor: University of Texas Southwestern Medical Center

  • Benjamin M Greenberg, MD, PRINCIPAL_INVESTIGATOR, University of Texas Southwestern Medical Center

Study Record Dates

These dates track the progress of study record and summary results submissions to ClinicalTrials.gov. Study records and reported results are reviewed by the National Library of Medicine (NLM) to make sure they meet specific quality control standards before being posted on the public website.

Study Registration Dates

Study Start Date2012-06
Study Completion Date2030-06

Study Record Updates

Study Start Date2012-06
Study Completion Date2030-06

Terms related to this study

Keywords Provided by Researchers

  • Neuromyelitis Optica
  • Neuromyelitis Optica Spectrum Disorder
  • Transverse Myelitis
  • Optic Neuritis
  • Biorepository

Additional Relevant MeSH Terms

  • Neuromyelitis Optica
  • Neuromyelitis Optica Spectrum Disorder
  • Transverse Myelitis
  • Optic Neuritis