This is an observational, multi-center, international disease registry designed to collect longitudinal data and create a knowledge base that will be utilized to improve the care and treatment of patients with LAL Deficiency. Participation in the Registry by both physicians and patients is voluntary.
Lysosomal Acid Lipase Deficiency, Cholesterol Ester Storage Disease, Wolman Disease, Acid Cholesteryl Ester Hydrolase Deficiency, Type 2, Acid Lipase Deficiency, LIPA Deficiency, LAL-Deficiency
This is an observational, multi-center, international disease registry designed to collect longitudinal data and create a knowledge base that will be utilized to improve the care and treatment of patients with LAL Deficiency. Participation in the Registry by both physicians and patients is voluntary.
Lysosomal Acid Lipase (LAL) Deficiency Registry
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Phoenix, Arizona, United States,
Los Angeles, California, United States,
Stanford, California, United States, 94305
Orlando, Florida, United States,
Atlanta, Georgia, United States,
Chicago, Illinois, United States, 60611
Boston, Massachusetts, United States, 02115
Detroit, Michigan, United States, 48236
Minneapolis, Minnesota, United States, 55111
Hackensack, New Jersey, United States,
Researchers look for people who fit a certain description, called eligibility criteria. Some examples of these criteria are a person's general health condition or prior treatments.
For general information about clinical research, read Learn About Studies.
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ALL
No
Alexion Pharmaceuticals, Inc.,
Alexion Pharmaceuticals, STUDY_DIRECTOR, Sponsor GmbH
2029-08-30