RECRUITING

Scleroderma Registry & Repository At the Hospital for Special Surgery

Study Overview

This clinical trial focuses on testing the efficacy of different digital interventions to promote re-engagement in cancer-related long-term follow-up care for adolescent and young adult (AYA) survivors of childhood cancer.

Description

The overall objective of the Scleroderma Registry is to support and promote the basic science and clinical research of this complex rheumatic disease at the Hospital for Special Surgery (HSS). The registry facilitates our understanding of the clinical features, pathobiology, genetics of Scleroderma. This will ultimately lead to a potential treatment for this currently untreatable condition.

Official Title

The Scleroderma Registry & Repository

Quick Facts

Study Start:2006-08
Study Completion:2030-01
Study Type:Not specified
Phase:Not Applicable
Enrollment:Not specified
Status:RECRUITING

Study ID

NCT01656447

Participation Criteria

Researchers look for people who fit a certain description, called eligibility criteria. Some examples of these criteria are a person's general health condition or prior treatments.

Ages Eligible for Study:18 Years
Sexes Eligible for Study:ALL
Accepts Healthy Volunteers:Yes
Standard Ages:ADULT, OLDER_ADULT
Inclusion CriteriaExclusion Criteria
  1. * Individuals older than 18 years of age with Scleroderma
  1. * Individuals younger than 18 years of age
  2. * Individuals older than 18 years of age without Scleroderma

Contacts and Locations

Study Contact

Eliza Pelrine, BA
CONTACT
(212)774-2123
pelrinee@hss.edu
Emily Bakaj, BA
CONTACT
(212)774-7620
bakaje@hss.edu

Principal Investigator

Robert F Spiera, MD
PRINCIPAL_INVESTIGATOR
Hospital for Special Surgery, New York
Jessica K Gordon, MD
PRINCIPAL_INVESTIGATOR
Hospital for Special Surgery, New York

Study Locations (Sites)

Hospital for Special Surgery
New York, New York, 10021
United States

Collaborators and Investigators

Sponsor: Hospital for Special Surgery, New York

  • Robert F Spiera, MD, PRINCIPAL_INVESTIGATOR, Hospital for Special Surgery, New York
  • Jessica K Gordon, MD, PRINCIPAL_INVESTIGATOR, Hospital for Special Surgery, New York

Study Record Dates

These dates track the progress of study record and summary results submissions to ClinicalTrials.gov. Study records and reported results are reviewed by the National Library of Medicine (NLM) to make sure they meet specific quality control standards before being posted on the public website.

Study Registration Dates

Study Start Date2006-08
Study Completion Date2030-01

Study Record Updates

Study Start Date2006-08
Study Completion Date2030-01

Terms related to this study

Keywords Provided by Researchers

  • Scleroderma
  • Scleroderma Registry
  • Hospital for Special Surgery Scleroderma

Additional Relevant MeSH Terms

  • Scleroderma