Patients are being asked to be in this research study because medical researchers hope that by gathering information about a large number of children with pulmonary hypertension over time, their understanding of the disease process will increase and lead to better treatment. Investigators believe that pulmonary hypertension in children is different than pulmonary hypertension in adults and this study will help us understand those differences.
Pulmonary Vascular Disease, Pulmonary Arterial Hypertension
Patients are being asked to be in this research study because medical researchers hope that by gathering information about a large number of children with pulmonary hypertension over time, their understanding of the disease process will increase and lead to better treatment. Investigators believe that pulmonary hypertension in children is different than pulmonary hypertension in adults and this study will help us understand those differences.
Pediatric Pulmonary Hypertension Network (PPHNet) Informatics Registry
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Stanford University Medical center, Palo Alto, California, United States,
University California San Francisco, San Francisco, California, United States,
Children's Hospital Colorado, Aurora, Colorado, United States, 80045
Boston Children's Hospital, Boston, Massachusetts, United States,
Columbia University Medical Center, New York, New York, United States,
Children's Hospital of Philadelphia, Philadelphia, Pennsylvania, United States,
Vanderbilt University Medical Center, Nashville, Tennessee, United States,
Researchers look for people who fit a certain description, called eligibility criteria. Some examples of these criteria are a person's general health condition or prior treatments.
For general information about clinical research, read Learn About Studies.
1 Day to 21 Years
ALL
No
University of Colorado, Denver,
Steven H Abman, MD, PRINCIPAL_INVESTIGATOR, Children's Hospital Colorado
David D Ivy, MD, PRINCIPAL_INVESTIGATOR, Children's Hospital Colorado
Kenneth D Mandl, MD, PRINCIPAL_INVESTIGATOR, Boston Children's Hospital, Harvard School of Medicine
Jeffrey Fineman, MD, PRINCIPAL_INVESTIGATOR, University California San Francisco
Jeffrey Feinstein, MD, PRINCIPAL_INVESTIGATOR, Stanford University
Ian Adatia, MD, PRINCIPAL_INVESTIGATOR, University of Alberta Edmonton
Catherine Avitabile, MD, PRINCIPAL_INVESTIGATOR, Children's Hospital of Philadelphia
Mary Mullen, MD, PRINCIPAL_INVESTIGATOR, Boston Children's Hospital
Eric Austin, MD, PRINCIPAL_INVESTIGATOR, Vanderbilt University Medical Center
Marc Natter, MD, PRINCIPAL_INVESTIGATOR, Boston Children's Hospital
Erika Rosenzweig, MD, PRINCIPAL_INVESTIGATOR, Columbia University
2031-12