Cancer Experience Registry (CER) for Cancer Patients and Caregivers

Description

The Cancer Experience Registry®: An Online Survey Research Study to Understand the Experiences of Those Impacted By a Cancer Diagnosis. The Registry is a web-based platform to distribute cross-sectional and longitudinal surveys. Study surveys are designed based on input from advisor experts, including patients and caregivers, and focus on the social, emotional, physical, financial and decision-making experiences of those who have been diagnosed with cancer and their caregivers. Findings contribute toward enhancing care for patients, survivors and caregivers via programming and policy initiatives.

Conditions

Neoplasms, Cancer, Caregiver

Study Overview

Study Details

Study overview

The Cancer Experience Registry®: An Online Survey Research Study to Understand the Experiences of Those Impacted By a Cancer Diagnosis. The Registry is a web-based platform to distribute cross-sectional and longitudinal surveys. Study surveys are designed based on input from advisor experts, including patients and caregivers, and focus on the social, emotional, physical, financial and decision-making experiences of those who have been diagnosed with cancer and their caregivers. Findings contribute toward enhancing care for patients, survivors and caregivers via programming and policy initiatives.

Cancer Experience Registry: An Online Survey Research Study to Understand the Experiences of Cancer Patients and Caregivers

Cancer Experience Registry (CER) for Cancer Patients and Caregivers

Condition
Neoplasms
Intervention / Treatment

-

Contacts and Locations

Washington

Cancer Support Community Research & Training Institute, Washington, District of Columbia, United States, 20015

Participation Criteria

Researchers look for people who fit a certain description, called eligibility criteria. Some examples of these criteria are a person's general health condition or prior treatments.

For general information about clinical research, read Learn About Studies.

Eligibility Criteria

  • * Have received a cancer diagnosis or have been a family caregiver or informal caregiver (i.e., a relative or friend) for someone diagnosed with cancer
  • * Live in United States, a US territory, or Canada
  • * Able to read and understand English
  • * None

Ages Eligible for Study

18 Years to

Sexes Eligible for Study

ALL

Accepts Healthy Volunteers

Yes

Collaborators and Investigators

Cancer Support Community, Research and Training Institute, Philadelphia,

Erica E. Fortune, PhD, PRINCIPAL_INVESTIGATOR, Cancer Support Community

Study Record Dates

2035-12