Natural History Study of Individuals With Autism and Germline Heterozygous PTEN Mutations

Description

The purpose of this study is to determine cross-sectional and longitudinal medical, behavioral, and cognitive differences between PTEN ASD and other groups, as well as to identify cognitive, neural systems, and molecular biomarkers specific to PTEN ASD. In addition, this study will be creating and maintaining a biorepository and linked phenotypic database for PTEN ASD.

Conditions

PTEN, ASD, Autism, Macrocephaly, PTEN Hamartoma Tumor Syndrome

Study Overview

Study Details

Study overview

The purpose of this study is to determine cross-sectional and longitudinal medical, behavioral, and cognitive differences between PTEN ASD and other groups, as well as to identify cognitive, neural systems, and molecular biomarkers specific to PTEN ASD. In addition, this study will be creating and maintaining a biorepository and linked phenotypic database for PTEN ASD.

Natural History Study of Individuals With Autism and Germline Heterozygous PTEN Mutations

Natural History Study of Individuals With Autism and Germline Heterozygous PTEN Mutations

Condition
PTEN
Intervention / Treatment

-

Contacts and Locations

Los Angeles

University of California at Los Angeles, Los Angeles, California, United States, 90095

Stanford

Stanford University Medical Center, Stanford, California, United States, 94305

Boston

Boston Children's Hospital, Boston, Massachusetts, United States, 02115

Cincinnati

Cincinnati Children's Hospital Medical Center, Cincinnati, Ohio, United States, 45229

Cleveland

Cleveland Clinic, Cleveland, Ohio, United States, 44195

Participation Criteria

Researchers look for people who fit a certain description, called eligibility criteria. Some examples of these criteria are a person's general health condition or prior treatments.

For general information about clinical research, read Learn About Studies.

Eligibility Criteria

    Ages Eligible for Study

    18 Months to

    Sexes Eligible for Study

    ALL

    Accepts Healthy Volunteers

    Yes

    Collaborators and Investigators

    Boston Children's Hospital,

    Antonio Hardan, MD, STUDY_CHAIR, Stanford University

    Study Record Dates

    2026-12