RECRUITING

COPD Patient-Powered Research Network

Study Overview

This clinical trial focuses on testing the efficacy of different digital interventions to promote re-engagement in cancer-related long-term follow-up care for adolescent and young adult (AYA) survivors of childhood cancer.

Description

The COPD Patient-Powered Research Network (COPD PPRN) is a patient research registry with the goal of enrolling 75,000 or more COPD patients and those at risk who are willing to share their heath information over several years and participate in research. The COPD PPRN has built an online platform to allow volunteers to enroll electronically, complete surveys, be contacted about studies they qualify for and become connected to COPD resources. The goal of the registry is to speed research to find better treatments for COPD and ultimately a cure.

Official Title

COPD Patient-Powered Research Network

Quick Facts

Study Start:2014-08
Study Completion:2030-01
Study Type:Not specified
Phase:Not Applicable
Enrollment:Not specified
Status:RECRUITING

Study ID

NCT02803242

Participation Criteria

Researchers look for people who fit a certain description, called eligibility criteria. Some examples of these criteria are a person's general health condition or prior treatments.

Ages Eligible for Study:18 Years
Sexes Eligible for Study:ALL
Accepts Healthy Volunteers:Yes
Standard Ages:ADULT, OLDER_ADULT
Inclusion CriteriaExclusion Criteria
  1. * 18 years or older that says yes to one of the following:
  2. * COPD diagnosis
  3. * Current or former smoker
  4. * Family history of respiratory disease
  5. * Symptomatic of respiratory disease
  1. * Non-English speaking

Contacts and Locations

Study Contact

Gretchen M McCreary, MA
CONTACT
866-731-2673
gmccreary@copdfoundation.org
Elisha Malanga
CONTACT
866-731-2673
emalanga@copdfoundation.org

Study Locations (Sites)

COPD Foundation
Washington, District of Columbia, 20001
United States

Collaborators and Investigators

Sponsor: COPD Foundation

Study Record Dates

These dates track the progress of study record and summary results submissions to ClinicalTrials.gov. Study records and reported results are reviewed by the National Library of Medicine (NLM) to make sure they meet specific quality control standards before being posted on the public website.

Study Registration Dates

Study Start Date2014-08
Study Completion Date2030-01

Study Record Updates

Study Start Date2014-08
Study Completion Date2030-01

Terms related to this study

Keywords Provided by Researchers

  • copd
  • emphysema
  • bronchitis
  • bronchiectasis

Additional Relevant MeSH Terms

  • Chronic Obstructive Pulmonary Disorder
  • Chronic Obstructive Lung Disease
  • Emphysema
  • Chronic Bronchitis