This study aims to understand the state of onset of NLSD(neutral lipid storage disease) / TGCV(triglyceride deposit cardiovasculopathy) worldwide, background information of affected patients, and natural history of the disease, as well as exploring the prognostic factors and assessing the efficacy of disease-specific treatment.
Neutral Lipid Storage Disease
This study aims to understand the state of onset of NLSD(neutral lipid storage disease) / TGCV(triglyceride deposit cardiovasculopathy) worldwide, background information of affected patients, and natural history of the disease, as well as exploring the prognostic factors and assessing the efficacy of disease-specific treatment.
International Registry Study of Neutral Lipid Storage Disease (NLSD) / Triglyceride Deposit Cardiomyovasculopathy (TGCV) and Related Diseases
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Stanford University, Stanford, California, United States, 94305-2004
Columbia University, New York, New York, United States, 10027
Researchers look for people who fit a certain description, called eligibility criteria. Some examples of these criteria are a person's general health condition or prior treatments.
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Translational Research Center for Medical Innovation, Kobe, Hyogo, Japan,
Kenichi Hirano, MD, Ph.D, PRINCIPAL_INVESTIGATOR, Department of Cardiovascular Medicine, Faculty of Internal Medicine, Graduate School of Osaka University
2025-03