RECRUITING

Amish/Mennonite Research Contact Registry

Study Overview

This clinical trial focuses on testing the efficacy of different digital interventions to promote re-engagement in cancer-related long-term follow-up care for adolescent and young adult (AYA) survivors of childhood cancer.

Description

The purpose of this registry is to find members of the Plain Community who are interested in participating in future medical research studies. Having a registry makes it easier to contact and offer study participation to individuals who are appropriate for a new research study based on their own and their family medical history. Studies will focus on increasing knowledge about disorders affecting those who are Amish and Mennonite.

Official Title

Research Contact Registry for Members of the Amish and Mennonite Communities

Quick Facts

Study Start:2016-10
Study Completion:2030-12
Study Type:Not specified
Phase:Not Applicable
Enrollment:Not specified
Status:RECRUITING

Study ID

NCT02990572

Participation Criteria

Researchers look for people who fit a certain description, called eligibility criteria. Some examples of these criteria are a person's general health condition or prior treatments.

Ages Eligible for Study:Not specified
Sexes Eligible for Study:ALL
Accepts Healthy Volunteers:Yes
Standard Ages:CHILD, ADULT, OLDER_ADULT
Inclusion CriteriaExclusion Criteria
  1. * Amish and Mennonite men and women age 18 or older
  2. * Amish and Mennonite children with the permission of a parent
  1. * Amish and Mennonite men and woman age 18 or older who do not speak English
  2. * Those who are not Amish or Mennonite

Contacts and Locations

Study Contact

Cate Walsh Vockley, MS, LCGC
CONTACT
412-692-7349
catherine.walshvockley@chp.edu
Lina Ghaloul Gonzalez, MD, PhD
CONTACT
lina.gonzalez@chp.edu

Principal Investigator

Lina Ghaloul Gonzalez, MD, PhD
PRINCIPAL_INVESTIGATOR
University of Pittsburgh

Study Locations (Sites)

Children's Hospital of Pittsburgh
Pittsburgh, Pennsylvania, 15224
United States

Collaborators and Investigators

Sponsor: University of Pittsburgh

  • Lina Ghaloul Gonzalez, MD, PhD, PRINCIPAL_INVESTIGATOR, University of Pittsburgh

Study Record Dates

These dates track the progress of study record and summary results submissions to ClinicalTrials.gov. Study records and reported results are reviewed by the National Library of Medicine (NLM) to make sure they meet specific quality control standards before being posted on the public website.

Study Registration Dates

Study Start Date2016-10
Study Completion Date2030-12

Study Record Updates

Study Start Date2016-10
Study Completion Date2030-12

Terms related to this study

Keywords Provided by Researchers

  • Amish
  • Mennonite

Additional Relevant MeSH Terms

  • All