Sudden Unexplained Death in Childhood (SUDC) Registry

Description

The purpose is to increase the understanding of the characteristics, circumstances, medical histories and pathologies of children from ages 11 months through 18 years who have died suddenly and unexpectedly, and in some instances, without explanation. The SUDC Registry and Research Collaborative will analyze cases of sudden unexpected deaths in these children to understand risk factors and causes, and develop preventative measures.

Conditions

Sudden Unexplained Death Syndrome, Sudden Unexplained Death in Childhood

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Study Overview

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Study Details

Study overview

The purpose is to increase the understanding of the characteristics, circumstances, medical histories and pathologies of children from ages 11 months through 18 years who have died suddenly and unexpectedly, and in some instances, without explanation. The SUDC Registry and Research Collaborative will analyze cases of sudden unexpected deaths in these children to understand risk factors and causes, and develop preventative measures.

The SUDC Registry and Research Collaborative

Sudden Unexplained Death in Childhood (SUDC) Registry

Condition
Sudden Unexplained Death Syndrome
Intervention / Treatment

-

Contacts and Locations

New York

New York University School of Medicine, New York, New York, United States, 10016

Participation Criteria

Researchers look for people who fit a certain description, called eligibility criteria. Some examples of these criteria are a person's general health condition or prior treatments.

For general information about clinical research, read Learn About Studies.

Eligibility Criteria

  • * 11months to 18 years of age.
  • * Subjects whose cause of death was sudden and unexplained-"Postinfancy SIDS," "Sudden Death of Childhood," "Undetermined," "Late SIDS," a vague description of symptoms of "undetermined etiology," or a diagnosis acknowledged to be speculative by the prosecting pathologist
  • * If the retrospective case has banked DNA specimens.
  • * SUDC cases, parents and eligible family members from 11months-100 years of age.
  • * SUDC Subjects whose death was sudden and unexplained after the initial autopsy, and in whom a scene investigation and full autopsy was performed.
  • * If the SUDC case has DNA viable specimens, family members will be asked if they would also like to participate in the DNA portion. One or both biological parents if willing and able will be considered as a family subject.
  • * Biological siblings and second degree relatives from age of 0-100 years of age that have had a history or currently have a heart condition and/or neurology condition.
  • * Subjects that are younger than 11months or older than 18 years of age will be excluded as a SUDC case.
  • * Prospective SUDC cases of apparent suicide, homicide, and accident where the external cause was the obvious and only reason for the death will be excluded from this study.

Ages Eligible for Study

11 Months to 100 Years

Sexes Eligible for Study

ALL

Accepts Healthy Volunteers

Yes

Collaborators and Investigators

NYU Langone Health,

Orrin Devinsky, MD, PRINCIPAL_INVESTIGATOR, NYU Langone Health

Study Record Dates

2028-11-30